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  1. Leila

    Coronavirus - worldwide spread and control

    Death tolls and ICU capacities might be the most urgent numbers to look at but LongCovid the more important ones? I'm not saying having long term damage is worse than dying but it's something that needs more attention when it comes to arguing about spread and control. Yesterday, our...
  2. Leila

    The biology of coronavirus COVID-19 - including research and treatments

    Not sure this is the right thread - article on how aerosol and droplets in different social gatherings and scenarios. A room, a bar and a classroom: how the coronavirus is spread through the air The risk of contagion is highest in indoor spaces but can be reduced by applying all available...
  3. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Did they say anything about what they are doing at the LongC clinic? What treatments they're offering and how they take PENE into account?
  4. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Oops, I knew an Iranian with the same name and then assumed the author was male even though I was surprised about the openness and self reflexion that I'd associate more with a female. So I was double biased myself ranting about biases :oops: Will edit.
  5. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I have empathy for the author's suffering but I'm also really, really astonished. Is it - really - so hard to believe that there are people with physical ilnnesses that are just yet unknown or undiagnosed? The author only understands when going through herself? That's not even a lack of empathy...
  6. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Being a young woman should be enough to do the job. And being married. Or not. And having children. Or not. ;-)
  7. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article about LongC & the Covid Symptom Study by King's College. This was new to me: "The King's researchers have created a piece of computer code to pick out, from the start of a coronavirus infection, who is at risk of long Covid. It is not perfect. It correctly identifies 69% of people...
  8. Leila

    Well-known, famous people with Covid-19 and Long Covid

    Jordan Peterson had Covid in the midst of other severe health issues
  9. Leila

    The biology of coronavirus COVID-19 - including research and treatments

    I don't feel compfortable with a fast track vaccine. I'm not anti vaxx but I don't know what it - or any vaccine - might be doing to my immune system. I haven't had any ever since coming down with ME. I'm not sure vaccinating can be made mandatory directly. But indirectly maybe by...
  10. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid curse: More than 1,000 struck down in London as under-50s unable to shake off syndrome “They have very different starting points but one thing they talk about is fatigue. They talk about a post-exercise malaise. If they do any activity they are shattered for days, sometimes a week...
  11. Leila

    The biology of coronavirus COVID-19 - including research and treatments

    Why? Isn't it risk group and frontline health care workers first?
  12. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That's a really good article, also saying towards the end how long haulers often reject the idea of LC turning into ME (understandably so) I wish though these articles drawing paralleles between LC and ME would unravel why it is pwME are being disbelieved, still & despite all the high profile...
  13. Leila

    BPS attempts at psychologizing Long Covid

    I wonder how in 1 or 2 yrs things will be like amongst pwLC: If there will be a divide between the ones that have detectable organ damage that either really does explain their symptoms or at least gives them some proof to health care providers, family, employers etc. And then the ones without...
  14. Leila

    Coronavirus - worldwide spread and control

    The foreshadow of a second wave: An analysis of current COVID-19 fatalities in Germany "A second wave of SARS-CoV-2 is unfolding in dozens of countries. However, this second wave manifests itself strongly in new reported cases, but less in death counts compared to the first wave. Over the past...
  15. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A Komaroff on Long Covid and parallels to ME The tragedy of the post-COVID “long haulers” "Long-haulers include two groups of people affected by the virus: Those who experience some permanent damage to their lungs, heart, kidneys, or brain that may affect their ability to function. Those who...
  16. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    LongC on GMB; just mentioning "fatigue". Some chitchat with a doctor who's husband is suffering from LongC. At least, it seems to get a lot more attention in main stream media now.
  17. Leila

    Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for services, 2020, Greenhalgh et al.

    From what I understand from the linked source these touchpoints can also be negative. I had plenty of those in my "customer journey" with doctors where it sometimes was just one inappropriate comment that would keep me away from persuing a certain path (e.g. finding the cause for a symptom) for...
  18. Leila

    Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for services, 2020, Greenhalgh et al.

    I think since Covid affects so many organs/systems they need specialists from different fields like cardiology, neurology etc. and, most likely, psychology? I know that rehab facilities for post intensive care and post sepsis patients have all these, including occupational therapists etc...
  19. Leila

    Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for services, 2020, Greenhalgh et al.

    I just read this. It's great they study LongC, but I don't see how these results are different from any other chronic, "invisible" and/or underdiagnosed illness? Including uncertainty of prognosis... The only thing "new" is the cause but the effects seem to be the same. I know the purpose is...
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