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  1. Leila

    Well-known, famous people with Covid-19 and Long Covid

    The same is happening in Germany, e.g. with singer Nena ("99 Red Ballons"). I think the "culture industry" (music, theatre etc.) has been hit so hard by lockdowns that there's a lot of frustration and despair. Not only for the people on stage but also behind it. I also wondered if celebrities...
  2. Leila

    Well-known, famous people with Covid-19 and Long Covid

    It has only been 3 weeks for him, that's not "Long" Covid at all. I wish him the best, its very likely that he will fully recover. But he's often so unthoughtful and harsh with his words, it's probably better to not have him as an advocate. Imagine he's doing the P Garner move and will later...
  3. Leila

    Perrin Technique

    I've tried it on myself in 2015/16 with the steps that are described in the book using a dry brush (the ones on a stick). It didnt do anything for me but, of course, it could be I did it all wrong. I must say, his explanations did make sense but dont they all until they are never backed up by...
  4. Leila

    Long covid after breakthrough infection

    Appearently Israel is already promoting a third jab for people >60. That's only a couple of months after that population has had their 2nd jab... "Thursday's announcement follows a strong recommendation from the government-appointed team of experts on the pandemic to offer older adults a third...
  5. Leila

    Long covid after breakthrough infection

    Thanks for the clarification! That's reassuring. Do you think booster jabs will be necessary later?
  6. Leila

    Long covid after breakthrough infection

    Do the vaccines contribute to the mutation of new variants like Delta? If we didn't have the vaccines, would we still only have Alpha? Or do these mutations happen anyway? I'm wondering if without the vaccines we'd have a lot more severely affected and a high death rate but with the vaccine a...
  7. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Over 450 key workers with long Covid tell MPs of their struggles "Nurses, teachers, GPs and police officers among those to give evidence to cross-party inquiry. [...] One in five of the 460 key workers who responded to the call for evidence by the all party parliamentary group (APPG) on...
  8. Leila

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Since Sweden had only very mild lockdowns/ social distancing rules I'm curious: Are there attempts in Sweden, too, blaming LC on mental health issues due to restrictions?
  9. Leila

    Linking up with the Long covid community

    I'd think in the long run, people with LC that won't recover after >1 year or rather their patient orgnaizations will reach out to "us". To some extent I think it's normal and healthy that many dont want to be put in the ME category since there isn't enough knowledge about the sub categories in...
  10. Leila

    News from Germany

    I'm very ecxited about this documentary, ARTE is well known for their high quality content. Unfortunately, their ratings are way below the ones of the main channels with far worse content. But it's a good first step.
  11. Leila

    Guest Blog MEA: The Shame

    I am ashamed, still. Because being moderately affected puts you in that weird middle space between people seeing snippets of the seemingly normal outside-you and the terribly sick crash/PENE inside you. (Needless to say I'm glad for every inch of health I do have left). One of my dreaded...
  12. Leila

    Covid-19 vaccination experiences

    I've catastrophized about heavy hormones for endometriosis and Pregabalin for pain. They ended up reducing my symptoms so much. I didn't care about vitamins and they gave me painful gastritis. So appearently my body doesnt listen much to what my brain decides to worry about. Not to say I...
  13. Leila

    Covid-19 vaccination experiences

    Update after 1 week after 2nd dose: My Arm barely hurt for 2 days as well did my head and again, I had minor shivers/flu like symptoms. Back to prior baseline now. So much for "catastrophic thinking": I was all prepared with groceries, organized extra help etc. bc I anticipated worse symptoms...
  14. Leila

    Covid-19 vaccination experiences

    Had my first shot end of April (Biontech). Side effects - More headaches (my worst and most debilitating of all ME symptoms), returned to previous baseline after approx. 3 weeks - Flu like feeling in top of the usual one (pain in skin and bones, little shivering) for 2-3 days. - jab arm...
  15. Leila

    Iron deficiency and dysregulation

    Got it, thank you!
  16. Leila

    Iron deficiency and dysregulation

    Thank you! So ferritin levels should not be affected by infections? For yrs I thought my low ferritin might be due to heavy periods but that wasn't the cause either.
  17. Leila

    Iron deficiency and dysregulation

    I was also diagnosed several times with low ferritin while HB was normal. A well meaning non ME doctor thought to have found the reason for my "fatigue" and put me on iron IVs. They did raise ferritin for a short period of time and then it always dropped again quickly. Ferritin levels never...
  18. Leila

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    I was also put into cat 2 by my doc and have an appointment on Wed with Biontech. I hope I'll make it, I'm pretty scared. It's not fair, others are also in need of it, more than me. But to be honest, I'm just thinking about myself right now.
  19. Leila

    Covid-19 vaccines and vaccinations

    Would that also to be expected from the Moderna vaccine? If the data indicates that the vaccine prevents asymptomatic infection, can we assume a vaccine will also prevent LongCovid?
  20. Leila

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    In Germany, we can get the vaccine either in one of the big centres or at the GP's office. ME is not mentioned as a priority group but your GP can classify you as such to send you off to one of those centres. The GPs as of now only get a very limited supply. I got myself on 2 waiting lists...
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