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The most important thing would be to address PEM. To give health care workers the knowledge of how to spot it and, if a patient is presenting with it, promote pacing. From what we know so far that might be one of the few things that could help. At least stop progression. But it's against what...

Taking a mini pill might have less side effects. On the other hand, estrogen is important for the bones and pwME due to inactivity already are at risk for osteoporosis.

I have sever endometriosis so the pill is a life saver for me. Ever coming down with ME my periods became unbearable but also ovulation made me lay in bed sick for days with flu like symptoms on top of the usual ME ones. I guess ME and Endo form a nasty alliance.The pill ended my night sweats...

I think there are better meds for MS now

What does GBD mean? I got blocked long time ago, also just by 1st or 2nd degree association with I don't know who she doesn't like or something.

I also have this when I overdo. The burning I can handle but it always comes with the feeling of draining. As if my muscles are..pouring out or something. It's an ugly, nasty feeling.

My father died of a nosocomial superbug (3MRGN) he caught after heart surgery. I researched superbugs back then and looked into phage therapy, there was no chance here in Germany to get it (I contacted a somewhat fishy organization but it didn't seem safe. As well as a heart surgeon that had...

In my current state, 5yrs. My more severe state, 2 yrs.

My empathy for someone being sick with a virus etc. depends a lot on how they have shown empathy towards me. So if it's someone that had shown empathy towards me in the past I'm totally fine with them complaining and suffering "loudly". I do what I can to help. Being sick sucks. I do know. If...

Bob Saget's case really made me aware that if you fall and hit your head, get it checked out, even if you feel fine. Better safe than sorry.

I have mild sound and moderate to severe light sensitivity as symptoms of ME. I've always percieved numbers as being "friendly" or "grumpy" (5 is the most friendly prime number) and visual triggers often had a certain impression on me (certain shapes or colours feeling uncompfortable or...

Never tried it like that but will next time!

I also use fitted sheets from Amazon and sent them back when I accidentally bought the wrong depth. I have somebody change them for me but if have to do it myself I just sit/kneel in the middle, lift every corner and put it on and then the same for the sides. So no need to lift the whole...

What antivirals would that be? From what I understand there are non to target EBV.

Took over 4 yrs to get the right diagnosis and then another 2 for the right treatment. Unfortunately that's common though in gyneological illnesses. I think the more tests you do on sb the more abnormalities you might find and then it's tricky to differentiate what diagnosis is causing your...

I was diagnosed with pelvic congestion as well as May Thurner and Nut Cracker and Dunbar Syndrome/MALS. I also have severe endometriosis and wanted to make sure I'm not missing anything/blame all my lower abdominal and leg pain on that when there might be something else going on. Turned out it...

I've been dealing with acid reflux for some time and also came across these theories of physical therapy for the diaphragm. There's no scientific evidence. I went and tried anyway, not at a physiotherapist but a logopedist. They also treat people with dysphagia. They were recommended to me by...

Does anyone know what "overloading people's immune systems" in the quote below means? EU drug regulator expresses doubt on need for fourth booster dose "While use of additional boosters can be part of contingency plans, repeated vaccinations within short intervals would not represent a...

Update: Went back to my old baseline within 2 weeks.

Was negative, thankfully, so I made it to my family to rest off my remaining PEM from the jab.