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has anyone tried to order it? I tried from Norway with VPN, but my cards declined. Tried with a Norwegian, German and UK one. Is it any point in getting this if one actually experiences a change in heart rate when standing?

Has anyone preordered this? I tried, but no luck. I would assume one needs a US debit/credit card. https://www.stat-health.com/

Do we have any news with respect to oxalates? Has anyone tried supplementing it?

Who says anything about hiding symptoms? Viagra has a major effect on me. I experience less pain and fatigue. Not sure if I would be much better if I took it every day, but when I have done too much or need to do more than I able to, then taking Viagra helps a lot. I get some of the same effect...

Holy cow, that is interesting. Looked at the price of Bortezomib, and it ain't cheap. What is your thoughts on the proposed treatment/patent, and the safety of Bortezomib, dr. @Jonathan Edwards?

@Marky, interesting. Perhaps Obinituzumab will be used...? I asked Fluge about this 6 years ago. He said they were looking into it and other drugs that killed b-cells and memory b-cells. I think it was prof. Edwards that said it was like an atomic bomb compared to Rituximab.

Do we know what tests he is referring to?

Has anyone that suffers from OI and ME tried this out?

I hope someone can translate. I understand Swedish, but I can't do it at the moment. With respect to my post about cyclo and hla-c*07:04; it seems that PWME with ME after Canadian criteria with hla-c*07:04 have an increased chance of responding to cyclo treatment for their ME symptoms...

A presentation by dr. Saugstad (Oslo University Hospital). No written documentation or specifics..

Seems like hla-c*07:04 is a predictor of response to cyclo. It is very premature, but how does one test to figure out if ones got this or not?

i bought myself a device to test lactate. Over the years I’ve deteriorated with more fatigue, leg pain, cramps and the feeling of lactic acid. Nowadays it feels like the lactic acid is there 24/7. A couple of years ago I didn’t feel it before I walked few hundred steps. The readings are not...

If you look at blood lactate levels in patients they are not normal, but the critics say that they are high due to deconditioning.

A fellow PWME sent a FOI request for it. The Norwegian Public Institute of Health had no lawful way of not making it public even if they wanted. FOI requests are quite common in Norway. All correspondence to or from governmental agencies is to be listed. To, from, and the title is listed, and...

I'm not sure what "sources and methods" mean, but it is from a reliable source. Why Cochrane isn't open with this kind of stuff is a question, but I guess they would call it "internal work" or something like that. Cochrane doesn't like a PR scandal. Someone did leak e-mails to Reuters last...

I hope someone will attend and record it.

Has anyone tried ordering B5? "Use of vitamin B supplements was associated with higher levels of pantothenic acid and lower fatigue scores (data not shown)."

To my knowledge they are discussing a blinded cyclo trial, but I don't understand how they can manage to do it while keeping the study blinded. How is it possible? Could they make patients who get placebo nauseous in some way? Perhaps there is some drug you can give. Not sure if that will work...

If you'd like to write a reply to Gundersen in Morgenbladet ( https://en.wikipedia.org/wiki/Morgenbladet ), please do contact me. We've done translation business together before, with success - even though Landmark and Gundersen themselves wouldn't admit so. Landmark is a lost cause, but I...

In an article in 2016 Gundersen wrote this about the PACE trial, and the ongoing dispute about the data sheets: Later on he wrote: The translation was done in a hurry, so it might not be 100% accurate, but I guess it says enough. Nevertheless, I do hope that Dr. Gundersen would join this...