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I'm definitely thinking about it. I already wrote my lawyer about what's going on. But this won't "bring back" my leg. :( I have called the Independent Patient Counseling (UPD= Unabhängige Patientenberatung in Germany) and a Neurologist will call me next week. I have found three cases of people...

I have called the clinic today. They told me they have never ever heard of such a reaction before. They claim they have searched the literature worldwide (in an hour or so) and there is not one such reported case (sure they know). They say it simply cannot be possible that my pain is a...

I like it, @Allele. Thanks for doing this!

Thank you, @Webdog! :)

So, I didn't understand it - what do theta waves mean when being awake? I'm interested, too.

Would someone be willing (and have the energy) to summarize the Webinar a bit?

Fuuuuck :jawdrop: Thank you all for your help! I am very happy.

It is and it shows someone didn't think and/or understand, but this is nothing new when it comes to psychological words which so often have so many meanings...So, maybe he meant mind when he said brain, for him it's probably interchangeable...Who knows. Great post btw.

So you had these side effects with 50mg?!

Thank you @adambeyoncelowe, for all this valuable information! Do you have experiences with Clonidine? Right now it sounds more interesting than Pegabaline. I have to look it up though... You're right @Helen, I should contact them again. I wrote two eMails to the professor, and I think she...

I like your enthusiasm, @JenB. Although reality has proven itself again and again, you give some hope. Thank you.

The clinic didn't reply! But maybe I should contact them again. The funny thing is they didn't tell me anything about possible side effects before the test, and afterwards they told me everything was normal. Not for me. I can't use the leg properly since then.

Thank you @adambeyoncelowe! Amitriptyline belongs to the class of anti-depressants, and these are contra-indicated in my case. But I also don't feel sure with Pregabalin. (Do I slightly recall GABA was elevated? Would that be a problem?) I am also not so sure if Amitriptyline is used for...

I somehow, somewhere got the impression lithium is not absolutely harmless...Does anybody know more?

I see. Again muddle.

Hi all! Approximately 3 weeks ago I was at a neurological clinic where a nerve measurement was performed via "electric shocks". A day after this I had a bad pain in the leg that had been tested. It turned out this pain is neuropathic pain. I never had this kind of pain before. I fear this...

That's what I learned early on: functional = psychosomatic - all in your head. Interesting, though, that many/some doctors call epilepsy a functional disorder. I don't understand that fully.

I simply LOVE this picture, @arewenearlythereyet! It so perfectly says what it's about.

there was a time in history when it was believed that similar looking embryos share most genes and have the same origin...

That's how I had it in mind - that at this point, it's frozen, but that there's a WHO review process going on, and the results might change the classification, but probably doesn't (due to a desired continuation in classification). Wrong? What I want to say is "we're not safe" from having ME...