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Although I'm not the adrenal fatigue believer (to be honest...although I do think adrenal glands can exhaust, but not in the way it's talked about in adrenal fatigue), I do have low cortisol levels in the evening/at night (over the day they are low-ish, too), and I hypothesize that my "kick" in...

I just know it from dogs and horses: There are dogs/horses that restrict their eating by themselves if food supply is abundant, and there are dogs/horses that just eat and eat. I don't know why.

Actually, what are real and perceived symptoms? Is there a difference? And how can outstanders (i.e. someone without those symptoms) differentiate perceived vs. real? Obviously the body didn't consider developing proof systems for the outside...that egotist only wanted to ensure its own...

I totally agree with you (as I posted earlier). When I wrote about these issues somewhere else, I tried to show that 1) sick people, and thus people with ME, are discriminated, 2) after World War 2, society decided not to discriminate sick people anymore, 3) people with ME fight against this...

Yes. They have an interest and they "fight" for it. And what do we do? What can we do? It's nice to know we have a perception problem (wasn't that known all along?), but we certainly don't have Wessely&Co's networks. Even worse, the biggest ME charities in UK and Germany propagate questionable...

I think she used that as an example to show that changing the perception is needed. For learning and improving, the past is suited. I think someone who contacts Valerie Smith with delicate information will do so because he/she will know that she'll keep to her word and treat this information...

@chrisb, as a lawyer, Valerie Elliot Smith also knows how important confidentiality and secrecy is. The safety of a client's information comes first. So I assume she has the facts but mustn't share the details. That's not uncommon in such circles. Also, before court, facts come after...

She retold what she was told by someone who once was a member of the Press Complaints Commission, where they compared ME activists with animal rights activists, who obviously share our fate. For me, this is valuable feedback from the outside. Her opinion, as I understood, is that we need to...

Another thought that occurred to me: For the perception of the "ME community" or any other group - take stars - facts often are irrelevant. What counts is the picture to the outside. Valerie argued, in order to improve "our" position, this perception needs to be changed. In this process, facts...

She writes - and this was the message I took with me: We don't often get feedback about the "ME community" from the outside. Often, feedback isn't nice or comfortable, but it is important for progress and development. Feedback is another one's perception of oneself, and it might seem strange...

Maybe what she means is how the ME community is perceived. I agree that a typical political behavior is ignoring and keeping secret - until it can't anymore. Then a public statement is needed to reconcile. Is the ME community at the point that it has to make a public statement in order to...

Anger, wrath and rage aren't necessarily negative; there's lot of energy in them. In history, some huge changes were due to an angry "mob" (others due to nature catastrophes), and the mob plays an important role in the circulation of elites and shouldn't be underestimated. For me, that the "ME...

Up till now, I like the blog posts. Thank you @Valerie Eliot Smith! I think she has a good skill in observation, and I think she raises good points. The problem, as often, is putting ideas into action.

Here is something about Chlamydia that use the calcium pathway, too: https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1006911

Yes, viruses like EBV, HIV, and some HHV (I forgot which one) produce proteins that can open endoplasmic reticulum (ER) receptors that release Calcium; if those stores are emptied the cell opens calcium channels in the plasma membrane (through which, I guess, the virus can send its DNA/RNA). The...

I think apoptosis and autophagy play a role in fighting "invaders" (esp. viruses, don't know about bacteria), and the mitochondria play a role there.

My feeling is that approaches like these are far too simple to understand what's going on in ME. They seem to build on the belief ME is simple. I think biochemical approaches on a deeper level are needed.

Thank you @Snow Leopard! I'll read it. I don't remember the discussion because I wasn't sick in 2013, but maybe I'll return to have a look. Edit: Do you have a link at hand? Didn't find a thread on PR.

If THAT is true... :eek:

Do you mean that O2 uptake via the lungs and blood is normal, but the oxygen doesn't reach the cell where it is needed? (By the way, here https://www.ncbi.nlm.nih.gov/pubmed/3551513 the anaerobic threshold is defined as I would be interested if muscle burning - like the one from exercise -...