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I like it! Well-said @Keela Too (But don't hope to tease emotions where none are...)

Wow, thank you @Joh for checking, very valuable! I don't think these statements were in there before. I remember it sounded pretty much like "Evidence is clear - CFS is psychological, only a minor problem, and CBT/GET help". It seems this has been relativized to "it's our opinion". It's not...

Let's hope! This would be very good.

@Sid, you give examples of biochemical alterations that lead to changes in the human, amongst others behavioral changes. All these are not examples of "mental illness" as defined by psychiatry (or areas of psychology). It's only that psychiatry adopted them in the first place (as so many unknown...

Interesting (on p. 40 of the guideline), their own reason for being "selective":

I've just read it. This is really a great success. It's very important. Please German people with ME, give a chance the German Association.

I would leave an organization instantly if something like this censure happened. We could need money for real fights before courts, processes that might benefit many people with ME.

I simply cannot understand how members don't leave this organization. Everytime there comes a new guideline about tiredness Fatigatio behaves in the same manner - disgraceful! Shame!

There are good reasons for it being a social construct. What are the good reasons that mental illness is real, in the sense as it is defined by psychiatry? There is no question about the existence of odd or strange people, of people that have physical illnesses that lead to mental behavior...

I also found this again: https://www.s4me.info/threads/michael-sharpe-skewered-by-johnthejack-on-twitter.3464/page-18#post-67701 Great, thank you all!

Thank you so much for looking @Snowdrop! Maybe someone/I will come across it again...

What "relevant" is decides a doctor, and in my experience, symptoms/findings are often classified as irrelevant. My experience is also that only the most basic tests are performed - no checks for small fiber neuropathy e.g., only rudimentary ENG, but claiming everything is perfect with the...

In case of epilepsy the dosage is somewhere around 150-300mg I was told. With Pregabalin, the pain is ok. But I reduced to 12,5mg. I will make a brake tomorrow and then I'll see if the pain is gone or at least tolerable. A very clear statement. :)

I don't understand something: Why are negative thoughts linked to "anti-psychiatry"? The organizations I know of don't work for the abolotion of psychiatry, they want the abolition of forced psychiatry that uses means of torture to break people and which functions as a kind of "vassal" for...

Just cruel: I think this shows the kernel of psychiatry as an institution. Wouldn't it be great if this was replaced by understanding, empathy and a certain amount of love, people/therapists who really want to help people with their issues in life (that may have different origins)?

I totally agree with you, @alktipping. I simply don't know what we can do, only combine our strengths and say out loud what's going on. So many people seem to want to stick to the concept of "mental illness" which I can perfectly understand. I hear people say that they are afraid of "strange...

Hi @NelliePledge, so you are not so positive about Pregablin, too. Thank you so much for sharing your experience! 150mg for neuropathic pain is pretty high, isn't it? My GP told me it's unisono that 25-50mg are used, but there are certainly country differences. I think it is a good...

I can just speak from my own impression and experience in my family. Here I see it as progressive. But I am not sure there is any research about that. Does anybody have at hand the Michael Sharpe quote where he says PACE was not supposed to focus on ME/CFS but on chronic fatigue (which has an F...

This seems sad to me:

Thanks for pointing to this article. That's something I experienced, too, and therefore I can relate to it: