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  1. Inara

    Michael Sharpe skewered by @JohntheJack on Twitter

    I'm not so sure if kd is a patient who profited from GET/CBT... See the "special wording". But he/she is definitely a fan.
  2. Inara

    Why thousands of AI researchers are boycotting the new Nature journal

    This can only answer the "logic" of the market I fear.
  3. Inara

    Personality as a risk factor for ME/CFS and similar diseases

    I never That might be it... What's the logic here? Because maybe people with cancer don't have to band together, because maybe people with cancer are taken seriously? It isn't. It always was there, you just didn't see. Today people speak up, that's the difference. You just didn't care to...
  4. Inara

    Michael Sharpe skewered by @JohntheJack on Twitter

    So Mr. Sharpe isn't very honest today. Indeed, they propagated that CBT/GET are treatments for CFS and ME - however the illness is defined, in fact. Today, he peddals back; now he says only for those whose main symptom is "fatigue" (as we know, even that isn't correct), and he differentiates...
  5. Inara

    Michael Sharpe skewered by @JohntheJack on Twitter

    Thank you @dave30th, that was helpful.
  6. Inara

    Michael Sharpe skewered by @JohntheJack on Twitter

    What's he doing? This gets strange and stranger. Maybe someone is paid to post under Sharpe's name? Or has Mr. Sharpe retired and that's why he has so much time for this? It puzzles me. It seems he's always starting similarly: "Yeah really? Did you read the paper?" What's his agenda?
  7. Inara

    CDC responds to false SMC factsheet claim

    Yes @Wonko, you say it.
  8. Inara

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    ...someone who loves power and influence over others and fears to loose it...
  9. Inara

    Michael Sharpe skewered by @JohntheJack on Twitter

    If I understand it correctly - also taking @Jonathan Edwards's post into account - their primary goal was to study "fatigue" (however defined...) in a symptom cluster called "CFS", which they defined via the Oxford criteria. Some of those (per chance?) also fulfilled other criteria, their own...
  10. Inara

    CDC responds to false SMC factsheet claim

    This is such a huge change!
  11. Inara

    Chronic pain is not a disease (Psychology Today, 27 May 2018)

    I'd like to cite @Jonathan Edwards here: https://www.s4me.info/threads/chronic-pain-often-has-no-physical-cause-psychotherapy-can-reduce-the-suffering.4176/#post-72812 I know "Ye shall not"...but I really wish people who dismiss pain as "psychogenic" would have it. And I'll want them to know...
  12. Inara

    CDC responds to false SMC factsheet claim

    Thank you @Robert 1973, I think it is great that SMC changed its "factsheet"! Very important.
  13. Inara

    Anyone get rheumatic/arthritic type joint pain?

    I have joint pain, too, but sometimes I don't know whether some of it is due to scoliosis because there is a preferred side. I get swollen fingers when I go for a walk (worse when it's warm or hot). This is hurtful. I don't think this is of rheumatoid nature. A doctor once told me this could...
  14. Inara

    Michael Sharpe skewered by @JohntheJack on Twitter

    This is so confusing! Does he know himself what's right and wrong? Now what is it? Did they study chronic fatigue? Did they study people with any illness having chronic fatigue, too? Had people chronic fatigue right away and were misdiagnosed (with ME; or MS, cancer, Lupus...)? I really don't...
  15. Inara

    Janet Dafoe - The Whitney Plea

    I feel so, too. I just have a such a negative feeling when watching that video, and it's not the compassion I feel for Whitney - for whom I have so much compassion. I also agree on the other points you made. Although I think it's definitely ok to use politics for "our cause", I don't want to...
  16. Inara

    Me-ICC exclusions

    I'd say that's also correct here - also no evidence. "Burnout", which is officially re-named depression (also I can't see the evidence of why burnout and depression are the same), could very often be ME for instance. People with burnout are said to "recover" with rest and (pleasant) activity (of...
  17. Inara

    Janet Dafoe - The Whitney Plea

    I watched the video that was sent in the eMail, and there is this pleading sign.
  18. Inara

    Janet Dafoe - The Whitney Plea

    I feel like you @Andy. Very unhappy with this. I'm also not sure if it's "ok" to link a petition - that has a certain scope for which you sign - and other stuff together, which could suggest people signed for both. Actually, I'm a bit angry now that I think about it for longer...
  19. Inara

    Paper:Psychiatry As Social Control

    There's something interesting I read in a book by Gerhard Strate (Der Fall Mollath). He's arguing there is an ambivalence between instinctive needs and reason/humanism. The human still has an instinctive need to identify unwanted groups and to exclude them. But he also wants to be "civilized"...
  20. Inara

    David Tuller: Trial By Error: More on the CDC; Reader’s Digest; and BBC’s Newsbeat

    Oouuuccchhhh :x3: Aaarrrggghhh :dead: There's nothing to be said...just speechlessness... Edit: Yeah, sure...In your dreams...
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