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They do? I never had the impression. But I agree, if they do, this is difficult. I understood it such that the 2-day CPET shows something is going on in ME - as does the pyruvate dehydrogenase paper - and that exercise is not beneficiary.

Very good points in my view. I don't think they are so far-fetched. That's not my experience. I often feel like a pain in the ass to the doctor à la "Why do you have to bother me with your trivialities; gosh, I need to get rid of her fast. Prescribe something, tell her how you empathize, do...

I don't think so. I think most of them don't care.

I can totally relate to this. The "funny" thing is - even if you've made it to a specialist consultation for neuromuscular diseases (pretty rare in itself), and even if your symptoms sound very similar to a mito disease you won't be checked. At least that's what happened to me and I don't think...

Shouldn't you have the according thoughts and feelings then? I still do light training. I know I don't feel great during and after it. Still, I have a passion for activity (training), and I am convinced activity (exercise...) is important - if you're healthy. I know that with ME I'm probably...

I agree @Graham. And now I understand. Thank you. :) But officials, authorities, judges etc. don't see it that way. And I think about finding arguments, maybe even proofs, that what the psychs say is nonsense. My experience was it is enough that a psychiatrist, for instance, says you have that...

Dear @Graham, I need to admit that I don't understand entirely what your meaning is - I understand the part (and agree) that psych-people don't seem to use logic that much, which leads to inconsistent statements and theories, and that the psychs got all the money and, again, failed to prove...

I have asked the German Ministry of Health about this. I hope I'll get a reply. I am absolutely shocked, and I agree that this is a form of sexual abuse. Sometimes I can't believe what perverse ideas human beings can have.

I find that very interesting. Thanks @Helen for pointing to the publication and to the others for the discussion. I am curious about more.

I am not so sure if it's about "anti-vacciners" itself. I share @ukxmrv's thoughts. The idea behind vaccination is good, but probably its implementation must be checked and/or reconsidered. If I remember correctly one point of critique were adjuvants. It seems these can lead to an unexpectedly...

With "multiple ones" getting vaccined with several different germs was meant. If there are options to minimize the danger of worsening I'd choose them. It is possible you have to pay for the vaccine yourself though...Still I would try and not gamble. Thank you @Woolie! I really hope I will...

I'd call it severe if it is louder than your doorbell. It sounds terrible. I am so glad that you manage it! (Gives hope, too, in case if it gets worse.)

I was told by my immunologist, vaccine alright if I have stabilized, and then a vaccine without adjuvants and no living parts (sorry, english). No multiple vaccination.

Or what we measure via "intelligence tests" isn't intelligence at all... I am reminded of the book "Thinking fast, Thinking slow" about the fast reptilian part of the brain (e.g. intuition, feelings) and the slow part, the neocortex (logic, ratio...). Maybe one part of intelligence is how well...

That's it. When I started having tinnitus (at a young age) I was shocked and concentrated on it. I had problems with sleeping. So I decided to ignore it. If you can't ignore it, listen to something else (music, a breeze, birds,...). I can imagine there is tinnitus so severe you can't ignore...

Ah, thank you, obviously I misunderstood that. Indeed an interesting question. How is the GET training plan exactly? Intuitively, I don't think one will gain considerable muscle mass with GET. According endurance, I would expect at least some improvement. But it depends on the GET plan. In...

Not uncommon in the psychology field to cherry pick, as I've heard.

Yes, this is true for me, too. Good point! Edit: After stretching and so on...walking increases stiffness in my case.

Well, I would like to live in Norway, but I don't have much to offer...Beautiful country and I hear people are nice.

Is that a rhetoric question @Woolie, or in earnest? (Sorry I don't get it.) In order to increase fitness/load you need to put in recovery. So you can't just increase the volume from day to day, but you need adequate (active/passive) recovery time. After non-strenuous training one can train...