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  1. Inara

    Interpretation of DNA raw data

    What's also strange - several genes weren't analyzed although they say "whole genome sequencing". I don't see the pattern...I can't check it, of course, because there are too many genes. But in my eyes these were relevant genes.
  2. Inara

    Interpretation of DNA raw data

    @strategist, I have sent more details via PM. Thank you @sea for your wishes! They should provide usable data. But even though they are very nice and want to help it doesn't work.
  3. Inara

    “It Has Come to My Attention…” How Institutional Complaints Procedures are Being Weaponized (article in Quillette)

    Yes, but there's a limit, and it is well-known to the powerful: If a person feels he's got nothing to loose - because he has nothing left - he is more willing to revolt. So you have to give little to the poor, but enough so that they keep silent. Until a certain threshold "propaganda" works like...
  4. Inara

    “It Has Come to My Attention…” How Institutional Complaints Procedures are Being Weaponized (article in Quillette)

    Yes, happened to me too. That's when I decided never to fill out those questionnaires again. It was kind of a fixation on the questionnaire, nothing would change the mind.
  5. Inara

    Interpretation of DNA raw data

    The xls files contain dna data, too, but of genes that weren't analyzed in the first run. So I have an xls-file with one gene, another one with one gene, one with HLA genes and one with a handful of genes. Then there are the csv files containing the rest. To be honest I don't understand it...
  6. Inara

    Interpretation of DNA raw data

    When I opened the csv file in the text editor the genetic data started at once. There was no general information. Should I post some lines from the txt file (original csv file)? Thank you! :)
  7. Inara

    Interpretation of DNA raw data

    I saved a csv as .txt, but if I upload it on promethease I get an error message (unknown file format or so). As always. Nothing works: gvcf, xlsx, xls, csv or txt. :(
  8. Inara

    Seeing a neurologist - any tips?

    Wow @andypants, so happy for you!
  9. Inara

    Interpretation of DNA raw data

    Thank you, @Amw66, I'll try that.
  10. Inara

    Interpretation of DNA raw data

    Ok, I have checked the csv files. There is no info about format etc. The files can be opened and used as excel files. I did contact Promethease about this problem and they told me they can't help. The formatting of the files seems to be problematic.
  11. Inara

    Interpretation of DNA raw data

    Yes, that's what they say. There were problems with the gvcf file that couldn't be resolved. Then they provided me with xlsx and csv files, and this doesn't work too. Since I don't think anymore I will receive data in a reasonably format that can be used I wanted to try another option. I think...
  12. Inara

    Forward ME Group minutes 1st May 2018

    @chrisb, I completely share your view, to be honest also about O'Leary's letter and paper. I think you put forward the problems in a clear manner.
  13. Inara

    Article: The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

    Thank you @adambeyoncelowe! Is this meant by "changes in immune system activity"? I wonder...In my case, the thymus was found to be under-active compared to other women of my age...but I wonder how you could measure immune system activity via PET. Is it relevant that the right side was found to...
  14. Inara

    Interpretation of DNA raw data

    Thank you @strategist! I am pretty exhausted today, too, and I have to check the files (other device). The company who did the analysis was Dante Labs.
  15. Inara

    Interpretation of DNA raw data

    This was the idea. But, I have tried one online program. The problem lies in the formatting of the files or their content. I haven't tried several providers/programs and I think, due to file problem, it won't work. Ok, so I should try converting the files. And then try another program. But if...
  16. Inara

    Interpretation of DNA raw data

    Hi all! I had a genome analysis done. My raw data was supplied as cvs and xlsx files. Has anybody knowledge about how to interpret these results? Unfortunately, the data can't be uploaded to providers like promethease due to formatting problems (this can't be changed). Or has anybody an idea...
  17. Inara

    Article: The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

    What changes do PET scans reveal? A brief summary of Komaroff's Webinar "Hot Areas in ME/CFS Research". Thanks to the author!
  18. Inara

    Publications that show ME is biological

    For me, how fast the muscles burn or how fast they feel "drained" is a measure of whether I have a good day or a bad one (PEM).
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