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  1. Inara

    Who said: don't bother testing patients?

    That's how I understand it. He's actually advertising his fatigue-Oxford-CFS-agenda, like "Look, I'm opnening your eyes - I created CFS and I'll show you this is reality - the only reality". He's discrediting ME. It was maybe the beginning of his CFS-CF-CBT-GET success.
  2. Inara

    Who said: don't bother testing patients?

    I don't read it like you. How do you come to that conclusion? I only read the page Lucibee displayed. I interpret it such like Wessely differentiates between CFS and ME. CFS is defined operationally, ME - is not? CFS is a real diagnosis - ME is not? He says things about ICD that puzzle me (CFS...
  3. Inara

    Who said: don't bother testing patients?

    Does this really exist to some notable extent?
  4. Inara

    NZ - Complex Chronic Illness Support - Towards Wellness course

    While I respect any individual's experiences, I dislike how people believe that their way is the way, and thus promise a cure. :mad: By the way, equaling chronic fatigue and adrenal fatigue and burnout and CFS/ME...!? Edit: @Hutan, this hurt. :D
  5. Inara

    Who said: don't bother testing patients?

    Thanks for taking your time @Lucibee, I absolutely appreciate it. Maybe I will be able to use that for legal issues.
  6. Inara

    Who said: don't bother testing patients?

    Many thanks @Lucibee! and thank you @chrisb! Edit: Lucibee, can you also provide the page with chris' quote from post #22?
  7. Inara

    Who said: don't bother testing patients?

    Thank you @Lucibee! @chrisb, do you have the book? Would it be possible that you post a snapshot of the page where your quote is written?
  8. Inara

    Who said: don't bother testing patients?

    Do you have a doi or link to that? I can't find it. Or is it a book? Do you have an ISBN?
  9. Inara

    Who said: don't bother testing patients?

    I think what can also be clearly seen in this example is how similar the contents of different authors are. This is not science. I always wonder how something can be published that just cites what others have already written, without adding anything new or without something that needed extensive...
  10. Inara

    Who said: don't bother testing patients?

    They are also reinforcing fear on the doctors which is powerful for establishing and holding their ideology.
  11. Inara

    Who said: don't bother testing patients?

    Henningsen, Fink et al. "Medically Unexplained Symptoms, Somatisation and Bodily Distress: Developing better clinical Services", Cambridge Medicine, Ch. 2, p. 63: "If the doctors do not consider the possibility that the symptoms are stress reactions or otherwise based on altered perceptions...
  12. Inara

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Now I understand what they understand under "fatigue"! I think many of us know jetlag...my impression was it's always pretty severe. But I could function absolutely normal without any limitations. It's not comparable what people with ME experience, by far. It's so different that I wonder how...
  13. Inara

    Concerns about Cochrane

    That's a good talk (but I didn't listen to everything yet). I have respect for Gøtzsche.
  14. Inara

    While Wessely plays with the Mental Health Act, and Chalder, Sharpe and others do useless research , children are being locked away

    Obviously that's not what I meant. And I don't think we should start discussing systems (forum rules, very complex, often emotionally loaded). Let me just say that I think it could be better - there are problems - and I think there could be alternatives, but I wouldn't think too restricted (most...
  15. Inara

    News from Scandinavia

    That's really odd, I agree. I think most of us were maybe glad to have a name for one's disability, but to find joy in the diagnosis? The symptoms remain the same, no matter the name. I mourned for 6 weeks and said good-bye to my old life, at least for some time, and I set the goal to get back...
  16. Inara

    News from Scandinavia

    That must be a great feeling for the activists, to have that power...if only I could feel that too...and if only I could see the change that comes along with it... (cynisism)
  17. Inara

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    My feeling is Sharpe has no problem with using his name for comments.
  18. Inara

    Patient perceptions of post exertional malaise, 2018, Jason et al

    interesting! I wouldn't have recognized them. The concussions I had had the following symptoms - in the order of increasing time: headache terrible (!) headache, like an implosion nausea very, very sleepy, falling "asleep", "deep" sleep, heavy exhaustion unable to answer/speek, unable to open...
  19. Inara

    The Triumph of Eminence-Based Medicine - Brian Hughes

    I hope wikipedia is a reliable source in that case... Indeed, the per individual cost in the US is higher than in Germany or UK. In US, 46,2% of the costs are paid by the state. In Germany, it is 77%. I think the US health system is more expensive for the individual due to privatization...
  20. Inara

    The Triumph of Eminence-Based Medicine - Brian Hughes

    @NelliePledge @Jonathan Edwards, what I meant: The US health system is mostly private. Yes, people pay more; but the state doesn't. That's what counts. In contrast, the German, UK etc. health system is also financed by the state, and the state wants to reduce costs (and make possible profit...
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