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Hehe, finally in UK, too. Here we already had several cases. It says everything.

I can only speak for what I see in my family, and I have no evidence per se. So what I say next is only with respect to my family. It seems the vagus nerve is an issue, but it seems to be "over-active". So stimulation wouldn't be a good idea. Indeed, a family member made the observation that...

In fact, when I started looking at biochemistry - without really understanding it, like you can understand maths, just acknowledging it's really complex and utterly fascinating - indeed, everything is connected. It makes it sooo complex, and I wonder if ME (or other diseases) is just too complex...

That's great indeed, @JaimeS! I take a bow. Thank you. Maybe you should consider publishing it somewhere, even if it's "only" online so that you can be quoted.

Szasz didn't always say and write good things. But his earlier works are good I think.

What I very much dislike in all of this (i.e. refusal of tests due to iatrogenic harm, exact instructions for doctors how to behave, concept of "unhelfpful beliefs" etc.) is the patronising tone. Szasz called it the "therapeutic state" - where others, "experts", know better than yourself what's...

These are really good points, @DokaGirl. (I read Osler's Web, but I forgot much of it. :( ) Yes.

That makes sense, @Mithriel.

@DokaGirl, good list! Indeed it shows how the stigma in ME is kept. How did a stigma develop in the first place? For instance, why did the CDC "ambassadors" didn't take Lake Tahoe seriously? Sadly, we don't know more about the Royal Free Outbreak - or am I mixing it? The case where the staff...

That would be quite interesting. Would you list some of your reasons for stigma of ME?

I made that test for a treatment study, once at the start and once at the end. At the start, my handgrip strength was lower than normal (I was told at the end of the study), at the end it was much much better than normal. At the start, the handgrip strength got slightly worse with repetition...

Personally I think yes. Or the "deserving" and "undeserving" ones. That tells it all. After I questioned the correctness of the psycho diagnoses I was given, and after the ME diagnosis, I ordered my patient file. The file explained my feelings I had during an appointment with the psychiatrist...

This just occurred to me - what would be the consequences if a committee member breaches NICE's rules? Would there be legal consequences? Would there be a discussion of removing that person or its voting rights? Would it be terrible and damaging? If there are no consequences, then why shouldn't...

@JaimeS, what you write reminded me of "Snakes in Suits".

I think point 5 can be ruled out. It is already known that mould is dangerous (of course not in nanograms...).

That contradicts Oxford criteria, doesn't it? And in the Oxford cr., other symptoms than fatigue are optional

Why?

Oh no no, please no trouble!

Personally, I think I understand it. "Advertizing" was a nice word...there exists another for heavily transporting a certain ideology.

Would you be willing to summarize it or to quote which part seems important to you? Edit: My conclusion hasn't changed from what I read. He actually says ME is a symptom of a psychiatric disorder - an already known one (he doesn't name it). He critisizes psychiatry for being in a bad state not...