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  1. Chandelier

    Foot washing in the shower

    Interesting! I‘m a bit worried that this would lead to some rather hectic situations for me, as I‘m a rather long-legged fool, prone to cramps. I‘m surprised that I can’t easily find a simple and cheap tool to make getting up in the tub safe, easy and effortless. Being able to lay in the bath...
  2. Chandelier

    Priced out: Some Long COVID and ME specialists charge high prices for concierge care, The Sick Times

    Well, according to Dr Kaufman in their latest Unraveled podcast on YouTube they can get many of us to 80%+ Honestly, listening to this naively as a desperate ME/CFS sufferer, I‘m more than willing to go broke for the rest of my existence if they can get me back to living some sort of a life.
  3. Chandelier

    Foot washing in the shower

    Yes, I struggle with that too sometimes. So far, I managed to avoid drowning or starving… don’t mean to flex! However, standing while working with my arms and hands, especially above my head, drains my energy like nothing else. I wonder whether a combination of an anti-slip mat and a suction...
  4. Chandelier

    Foot washing in the shower

    Interesting, I use a (much more expensive) motorized brush to clean most of my body. The Beurer FC55: https://www.beurer.com/global/c/00306/ I find this brush very helpful since it allows me to save a lot of energy and it’s the only way I can exfoliate my old skin without risking PEM. The motor...
  5. Chandelier

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    There’s a post from 12 days ago on her YouTube channel mentioning that she was healthy enough to fly to see her dying father one last time. https://youtube.com/post/Ugkxw8jkmjmdjbLiTTX24S8ZaMum0-aul9V1
  6. Chandelier

    PEM-like descriptions and accounts in non-ME illnesses

    It’s under Resources->Factsheets: https://www.s4me.info/forums/fact-sheets.247/
  7. Chandelier

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Garner is a really interesting character. As mentioned before in this thread and written down by himself in this BMJ Blog titled "Covid-19 and fatigue—a game of snakes and ladders" : I also find it quite interesting how deliberately he seems to mix his opinions with work by READ-It by hosting...
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