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  1. Chandelier

    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    Ohh, quite|a|lot… I was under the impression that this must be something of utmost profoundness written in Latin ;)
  2. Chandelier

    Evaluation of Interventions for Cognitive Symptoms in Long COVID, 2025, Knopman et al

    https://www.neurologylive.com/view/multi-arm-phase-2-trial-fails-show-efficacy-cognitive-programs-treating-long-covid TLDR: It didn’t work but participants reported inprovements. More research is required. Key Takeaways The RECOVER-NEURO trial tested three interventions for long COVID but...
  3. Chandelier

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    https://www.bma.org.uk/bma-media-centre/covid-19-inquiry-report-reveals-government-s-catastrophic-failure-to-manage-the-pandemic-says-bma AI Summary: The report concludes that the UK governments responded far too slowly and complacently, leading to a mandatory lockdown and an estimated...
  4. Chandelier

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    https://www.england.nhs.uk/2025/11/nhs-issues-flu-jab-sos-with-worst-of-winter-only-weeks-away/ Related 1600-word article in the german newspaper Die Zeit: https://www.zeit.de/gesundheit/2025-11/influenza-grippewelle-corona-virus-ekaeltung
  5. Chandelier

    News from Germany

    https://www.ndr.de/nachrichten/hamburg/gesundheitsausschuss-zu-long-covid-kritik-am-kinder-uke,gesundheitsausschuss-100.html First report on yesterday’s meeting. Affected parents are making serious accusations against the Children’s UKE (Pediatric and Adolescent Medicine Center of the...
  6. Chandelier

    Norwegian Fluge & Mella daratumumab Haukeland trial 'ResetME' now accepting international donations

    Woohoo, wonderful, thank you so much! :balloons::emoji_runner::balloons:
  7. Chandelier

    Germany's "National Decade Against Post-Infectious Diseases"

    Rumor has it that the TV stations haven’t aired his statements yet. If that’s true, professor Kleinschnitz might have maneuvered himself into his own dark corner on X, hopefully never to be heard of again in the public debate. What might be his endgame? Career in politics… founding a movement à...
  8. Chandelier

    Open Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ) – Rob Wüst

    Negative feedback on BlueSky about this questionnaire: https://skywriter.blue/pages/did:plc:mpf7s65cdaxc6xpkyzttwuxt/post/3m64eqnxtzc2m
  9. Chandelier

    News from the USA, United States of America

    https://nurse.org/news/nursing-excluded-as-professional-degree-dept-of-ed/ Nursing Excluded as 'Professional' Degree By Department of Education Key Takeaways Graduate nursing students will lose access to higher federal loan limits previously available to professional degree programs. Nursing...
  10. Chandelier

    Germany's "National Decade Against Post-Infectious Diseases"

    Yes, most likely. The german ME/CFS society works in close cooperation with professor Scheinbenbogen from the Charité Berlin and they produced info material cooperatively in the past. Their website is very informative. The former health minister Lauterbach asked for double the 500 million euros...
  11. Chandelier

    News from Germany

    I was only able to watch the last couple of minutes but I got the impression that there was a wide consensus among the participants that ME/CFS & LC is not psychological (I heard this explicitly mentioned by psychiatrist Prof. Dr. Georg Schomerus) There is urgent need for more research & better...
  12. Chandelier

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    A pwME created a short (10min) interactive story game where everyday tasks and small challenges become overwhelming. It is expected to be available starting from 1. December and will cost £1.99.
  13. Chandelier

    Open Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ) – Rob Wüst

    https://xcancel.com/robwust/status/1991503273484841039?s=12 Rob Wüst @RobWust ME/CFS & Long COVID patients: we need your help! We’re validating a new tool to measure post-exertional malaise (PEM). Current questionnaires don’t capture its severity or impact. Your input changes that! English...
  14. Chandelier

    News from Republic of Ireland

    https://labour.ie/news/2025/11/20/heartless-refusal-of-government-to-consider-new-long-covid-scheme/ Summary: 159 healthcare workers with long-covid will be abandoned as workers lose full pay due to winding down of special scheme on the 31st of December. Ireland among small number of EU...
  15. Chandelier

    Review COVID-19 is "Airborne AIDS": Provocative oversimplification, emerging science, or something in between? Salamon, Pretorius et al, 2025

    Article from Medscape that makes use of the AIDS association; https://www.medscape.com/viewarticle/important-long-covid-lessons-aids-researchers-2025a1000wdc
  16. Chandelier

    News from Germany

    https://taz.de/Diagnose-Long-Covid-und-ME/CFS/!6130861/ TAZ has a 1300 word interview with former social pedagogy professor and pwLC Fabian Fritz. His condition worsened considerably after activity therapy during a rehabilitation clinic stay: The hamburger health committee session in which...
  17. Chandelier

    News from the USA, United States of America

    https://www.vox.com/future-perfect/467821/pandemic-prevention-vaccines-covid-flu (Paywalled article) About the author:
  18. Chandelier

    Analysis: The future of excess mortality after COVID-19 – Swiss Re

    https://www.swissre.com/institute/research/topics-and-risk-dialogues/health-and-longevity/covid-19-pandemic-synonymous-excess-mortality.html Swiss Re, the world’s largest reinsurer, is cautioning insurance companies that it continues to observe a persistent trend of excess deaths following...
  19. Chandelier

    News from the USA, United States of America

    https://sanfernandosun.com/2025/11/19/a-medical-breakthrough-saved-millions-of-lives-during-covid-why-are-we-turning-our-backs-on-it-now/ Column by Clay Alspach, executive director of the Alliance for mRNA Medicines. AI Summary:
  20. Chandelier

    News from the USA, United States of America

    https://coloradosun.com/2025/11/13/stitchiing-the-situation-art-exhibition-aurora-peoples-building/ Another article about the long covid art project "It comes in Waves". AI Summary:
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