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  1. Chandelier

    Open Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ) – Rob Wüst

    I’m a bit confused about why this whole drama unfolded? In the introduction text of the questionnaire it says: So if the feedback from this second phase turns out to be negative, they would go back to the sketching board anyway, no? But then why does the austrian ME/CFS society publish this...
  2. Chandelier

    News from Austria and Switzerland

    https://www.tagesanzeiger.ch/chronische-rueckenschmerzen-wie-jurina-slavicek-aus-tegerfelden-634164190677 Article about a patient with chronic back pain who underwent multimodal therapy. What caught my eye: AI Summary: Jurina Slavicek, 56, has lived with chronic back pain for over 25 years...
  3. Chandelier

    News from Germany

    His stance in this interview is a bit more nuanced: - Long Covid isn’t well defined and ME/CFS is prematurely branded as the worst version of it without studies to back it up. - No matter the physical tests (MRI, etc.), nothing physically wrong shows up in pwME - pwME suffer a lot and need care...
  4. Chandelier

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    https://observer.co.uk/news/national/article/we-covid-doctors-knew-who-would-pay-the-price-for-johnsons-inertia
  5. Chandelier

    Effectiveness of Five-Element Regulatory Therapy for post-COVID syndrome: a retrospective cohort study, 2025, Ding et al.

    Effectiveness of Five-Element Regulatory Therapy for post-COVID syndrome: a retrospective cohort study Abstract Introduction: Post-COVID syndrome is characterized by persistent, unexplained symptoms including chronic cough, palpitations, insomnia, and fatigue that develop following SARS-CoV-2...
  6. Chandelier

    Decadelong low basal ganglia NAA/tCr from elevated tCr supports ATP depletion from [Mt] dysfunction and neuroinflammation in [GWI], 2025, Cheshkov+

    Decadelong low basal ganglia NAA/tCr from elevated tCr supports ATP depletion from mitochondrial dysfunction and neuroinflammation in Gulf War illness Abstract Abstract Reduced N-acetylaspartate (NAA)/total creatine (tCr) ratio found with long echo-time proton magnetic resonance imaging ( 1...
  7. Chandelier

    USA: The RECOVER Initiative - Long Covid research

    https://www.forbes.com/sites/greglicholai/2025/11/22/long-covids-shadow-lingers/ AI summary Long COVID remains a major post-pandemic challenge, affecting about 7% of U.S. adults and showing highly varied symptom patterns that complicate diagnosis, treatment, and research. NIH RECOVER data...
  8. Chandelier

    A prospective longitudinal study of the associations between childhood & adolescent interpers. experiences & adult attachment orientations,2025, Dugan

    https://nautil.us/childhood-friends-not-moms-shape-attachment-styles-most-1247316/ AI Summary: A new 30-year longitudinal study finds that childhood friendships have a stronger influence on adult attachment styles than parental relationships. Maternal behavior still matters but explains only...
  9. Chandelier

    A prospective longitudinal study of the associations between childhood & adolescent interpers. experiences & adult attachment orientations,2025, Dugan

    A prospective longitudinal study of the associations between childhood and adolescent interpersonal experiences and adult attachment orientations. Abstract Attachment theory (Bowlby, 1973, 1980, 1969/1982) suggests that early interpersonal experiences lay the foundation for the ways people...
  10. Chandelier

    The loss of efficacy of fluoxetine in pediatric depression: explanations, lack of acknowledgment, and implications for other treatments, 2025, Plöderl

    It seems to me as if there’s no substance, "just words" as @rvallee would say. From the end of the article:
  11. Chandelier

    The loss of efficacy of fluoxetine in pediatric depression: explanations, lack of acknowledgment, and implications for other treatments, 2025, Plöderl

    https://www.theguardian.com/society/2025/nov/20/prozac-no-better-than-placebo-for-treating-children-with-depression-experts-say AI summary: A new meta-analysis of 12 trials (1997–2024) finds that fluoxetine (Prozac) offers no clinically meaningful benefit over placebo for treating depression...
  12. Chandelier

    The loss of efficacy of fluoxetine in pediatric depression: explanations, lack of acknowledgment, and implications for other treatments, 2025, Plöderl

    The loss of efficacy of fluoxetine in pediatric depression: explanations, lack of acknowledgment, and implications for other treatments Abstract Objectives Fluoxetine is among the most used antidepressants for children and adolescents and frequently recommended as first-line pharmacological...
  13. Chandelier

    Well-known, famous people with Covid-19 and Long Covid

    I couldn’t find a more informative english article. I don’t allow ads on my devices: https://ublockorigin.com/
  14. Chandelier

    Well-known, famous people with Covid-19 and Long Covid

    Brazilian singer Eva Rodrigues Praia Walkey
  15. Chandelier

    Article: Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise — The Sick Times

    Exactly! Simon Spichak, the author of this article, wrote about the Canadian Long COVID guidelines (and Paul Garner‘s involvement) earlier this year: https://thesicktimes.org/2025/07/08/experts-call-new-canadian-long-covid-guidelines-contradictory-and-deeply-concerning/ Edit: previous...
  16. Chandelier

    Article: Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise — The Sick Times

    https://thesicktimes.org/2025/11/21/less-than-20-of-long-covid-trials-involving-exercise-even-mention-post-exertional-malaise/ Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say Written by Simon Spichak – November 21, 2025 Key points you...
  17. Chandelier

    Germany's "National Decade Against Post-Infectious Diseases"

    How could they invite a postviral patient that was helped by exercise while ignoring very severe pwME that aren’t able to participate and were harmed by exactly that exercise regime!? THAT‘S concerning! :scream:
  18. Chandelier

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    https://www.bohs.org/media-resources/press-releases/detail/lady-hallett-shouldnt-hold-her-breath-says-health-campaign-group/ AI summary: The COVID Airborne Transmission Alliance (CATA) warns Baroness Hallett not to expect swift implementation of recommendations from the UK COVID-19 Inquiry’s...
  19. Chandelier

    Individualized and Controlled Exercise Training Improves Fatigue and Exercise Capacity in Patients with Long-COVID, 2024, Kieffer et al.

    I'm posting this study from 2024 due to this news article from today proclaiming loudly that exercise at just the right dose is the key against Long Covid: https://www1.wdr.de/nachrichten/rheinland/tribaltherapie-longcovid-aachen-100.html tldr: The wife of a senior physican at a german...
  20. Chandelier

    Individualized and Controlled Exercise Training Improves Fatigue and Exercise Capacity in Patients with Long-COVID, 2024, Kieffer et al.

    Individualized and Controlled Exercise Training Improves Fatigue and Exercise Capacity in Patients with Long-COVID Abstract Background: Long-term health effects after SARS-CoV-2 infections can manifest in a plethora of symptoms, significantly impacting the quality of life of affected...
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