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    Members of the European Parliament call for more funds for research into ME/CFS

    This is very good news. Huge thanks to @Michiel Tack and others who’ve helped the bring this about. (Not sure which other members of European ME Coalition are on here.)
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    Coronavirus - worldwide spread and control

    Epidemiologist Ian Lipkin: Are we getting the pandemic response right? BBC HARDTALK Podcast: https://www.bbc.co.uk/programmes/w3cszc1x iplayer (TV): https://www.bbc.co.uk/iplayer/episode/m000k69l/hardtalk-dr-ian-lipkin-epidemiologist-columbia-university-new-york Blurb: “All of us fervently...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    There was some discussion about the ethics of CBT/GET trials in another thread, where I wrote: “To me, the interesting ethical questions are: 1) Is it ethical to try to convince patients that their illness is reversible by their own efforts (SW’s CBT model) in the absence of any evidence which...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This is very much appreciated. I agree with @strategist that the CBT/GET model has been a much more significant factor in deterring people from ME/CFS research, but the demonisation has probably been a factor, and it has certainly appears to have deterred independent scientists from scrutinising...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    One more question for @Hilda Bastian: Jonathan is one of the very few independent experts who has got involved with the issues under review. Out of interest, will the IAG be consulting any other truly independent scientists with relevant experience of designing and conducting clinical trials...
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