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Thank you, Veronica. Both your poem and Rilke's resonate with me too. I will send you a longer response but I wanted to point out to anyone like me who had never come across Rainer Maria Rilke before that the original poem was written in German. As someone who occasionally translates poems and...

Apologies if this has been answered, but did Robert Souhami respond to your Qeios article? Do you think you’ve convinced him? Are you minded to add anything about DecodeME to your Qeios article?

Thanks again @ME/CFS Science Blog. Your blogs are particularly helpful for me when I’m not able to keep up with threads. I wish I was able to contribute more, but your summaries also take the pressure of me feeling that I need to follow everything on here in order to keep up with developments...

Dr Alastair Miller quoted on SMC: Oh, the irony!

George Monbiot on BlueSky: Full thread on one page: https://skywriter.blue/pages/did:plc:codfx2epdduamfycuyi5fjpb/post/3m2ny4m7hdk2t I have replied to George, urging caution and pointing him to this thread but I don’t know if he will see it. [Update: replies read and liked by George]

Thread here: https://www.s4me.info/threads/a-body%E2%80%93brain-circuit-that-regulates-body-inflammatory-responses-2024-jin-et-al.38356/

Something that strikes me again and again is how many scientists there are who don’t seem to understand – or chose to ignore – some very basic principles which can be perfectly understood by people like me with limited scientific knowledge and no scientific training. If this company were to...

I still struggle to accept it after more than 33 years.

I’ve never heard of this person and I haven’t watched the video. It would be nice to think that someone with his profile would use his influence to raise money and/or advocate for high quality research but history, and the posts above, suggests that he may be more likely to promote unevidenced...

One thing that your blog didn’t mention was sub-groups. I haven’t managed to keep up with discussions but as far as I understand the data from DecodeME doesn’t yet tell us whether ME/CFS is likely to be more than one disease, or anything about sub-groups. I’m not sure if this is something that...

Really good blog, as always @ME/CFS Science Blog Some minor issues, comments and suggestions: “Human DNA has 3.2 billion of these ‘base pairs’, but most of them are not relevant or the same in everyone.” Human DNA has 3.2 billion of these ‘base pairs’, but most of them are the same in...

Whatever people may think of Jeremy Hunt’s politics, he is an influential politician and I think it is useful to have as many politicians on our side as possible – providing they get the messaging right. If Jeremy Hunt, a former chancellor of the exchequer who supported cuts to public spending...

I only counted 2 and 1 peer. That’s really disappointing but perhaps an accurate reflection of how important many people perceive the issues to be.

More info on MEA website: https://meassociation.org.uk/2025/09/research-second-phase-funding-to-advance-the-development-of-a-diagnostic-test-for-me-cfs/ Good to see MEA and MERUK collaborating again. I hope there will be more collaboration with AfME and other ME/CFS charities too.

I’ve been thinking about this thread again. @Jonathan Edwards @DMissa @MelbME @chillier @Evergreen, @jnmaciuch @mariovitali, I would be interested to hear your thoughts.

Only just seen this. Fantastic news @Tom Kindlon! Congratulations :party:

Thanks you to all the pedants who resisted the temptation to point out that neither “which” nor “but” are prepositions. In this context I think “but” is a conjunction and “which” is a relative pronoun. But I’m happy to be corrected.

They always used to phone to discuss and agree edits but budgets are much tighter now – and turnaround times are shorter – so it almost never happens. It’s just something you have to accept if you submit a letter. I don’t mind them chopping bits out, as long as it doesn’t change the meaning, but...

I hope Dave will take you up. I think Vincent Racaniello does a regular podcast so maybe be he would be able to help too.

I’ve just noticed that the editor changed ME/CFS to ME in my letter. I understand the need for consistency but I would have preferred them to keep it as ME/CFS. For comparison, here is the letter as published and the letter I sent. Published: Submitted: I’m somewhat puzzled why they...