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I think that COVID-19 is causing flares and aggressive attacks of autoimmune and autoinflammatory connective tissue disorders in people who would have had a slower progression and or milder form of these diseases. So it’s the COVID making people sick via other pathways. I also think COVID can...

Thanks! I do really want it. They have suggested it as important for the medication I am on, I didn’t know about that until I saw the letter. But from my own point of view I have asthma quite badly since COVID, I live in fear of complications I think that steroid inhalers can increase risk...

Forgive me if I’m in the wrong place for this. I’ll move it if so…. I have a letter recommending I get flu vax, Covid booster and pneumonia vax, there may have been something else too I can’t remember. Anyone had pneumonia vaccine or know anything about it’s effects on people with ME or...

Excellent debunk folks :thumbsup:

No @SNT Gatchaman they said what they meant. Straight up. Up front. They need their busy colleagues to understand straight away where they’re coming from. No reflection no remorse, on course. You’re right the third option is implied. The standard practice. For the wriggle room. For the...

“Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be distinguished from medical and psychiatric conditions in the differential diagnosis of fatigue” A succinct summary of the approach, credit where it’s due.

@Sasha Thanks for starting this thread to share this extremely important petition! @JemPD absolutely agree masks need to be worn everywhere you can catch respiratory infections. Rationing isn’t it? Its also the case that the consulting rooms I’ve been in are very very confined spaces and you...

In the context of this being the Tory party, with much practical evidence of their ideological position. This being about payments by the state most essential to lower income and non independently wealthy for survival purposes, relating to disabled people, health and social security, this being...

An example of credulity. Or ordinary charity model conflict of interest, fearful of participation in public criticism of official bodies. Or a reluctance to publicly align with other advocacy groups in doing so.

I understand every single disabled persons and medical condition charity needs to prioritise filling this consultation out. But do we know have ME charities already responded or said that they are in the process of doing so, like Action for ME or ME Association? Apologies if this is answered...

I feel in my body like this is happening.

Fantastic response! :party::party::party: Beautiful update :heart:

I think it’s wonderful that B&W have done this work for charities. I think charities are obligated to work collectively in service of those who depend on them and it makes sense for them to follow the lead of the experts in this area of policy and law the specialists as B&W are. For smaller...

I had blood drawn recently. I’ve also been finger prick testing to check blood sugar as ME & LC leaving me sicker and sicker, thought worth checking for diabetes as some symptoms similar, doesn’t seem to be the case though. My blood looks a just little darker and thicker than it used to. Blood...

This is so sad.

Wonderful! :angel:

How good were they?! On it. While standing up too. I want media training from these folks… :emoji_boom:

A spokesperson from Cambridge's School of Clinical Medicine said it recognised it was a "very real condition" and took its teaching about it "very seriously". Indeed. That one’s on the medical school spokesperson, as well as the BBC reporter, indicating that the protest was required.

Soul crushing. I often think about how medicine is like the military. The hierarchy the harm to people outside and inside.

So helpful to read your experience thanks @boolybooly