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  1. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Yes indeed it is. You’re quite right. I’d go for two for one deal, a play for dominance and an avoidance of responsibility.
  2. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Umm. I noticed that they used Dear and kind regards but what else could they do? Certainly made up for this by a failure to sign it, along with the causal dismissal of the content. They had been written to on the subject of other human beings health and welfare and your reference to previous...
  3. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Maybe… My feeling is that the standard office response would need to be more polite than this one is, otherwise office staff might need to re trained or replaced. Or perhaps they really are all this inadequate at communicating with others and that is a contributing factor for their financial...
  4. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    One aspect of the manner in which the author of this letter from Cochrane addresses us here is that it seems the author cannot afford the ordinary pleasantries of written correspondence. On the one hand I think this may be taken as a mask off moment. Look at who we really are and see that you...
  5. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    A discourteous reply. Unequal to our enquiry.
  6. Ash

    People With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function, 2023, McLaughlin+

    If you already have LC damage done and or you can’t avoid getting infected because you're a disabled person who requires services and you’re neither wealthy nor healthy enough to isolate in a lovely cabin in the woods?
  7. Ash

    People With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Exhibit Similarly Impaired Vascular Function, 2023, McLaughlin+

    I can’t manage to read this study, could someone tell me how would this be monitored? Are there any existing interventions at all, if so are they rare and expensive or more widely available? warranting careful monitoring and the development of targeted interventions to improve endothelial...
  8. Ash

    Covid is evolving – but the UK is not doing enough to evolve with it - Professor Sheena Cruickshank, October 2023

    So many lives sacrificed to capitalism and cuts. How can we hope to live under these ever worsening conditions?
  9. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I think there are various articles and blog posts about the ideological foundations of Cochrane. That’s all supportive of @Jonathan Edwards conclusions.
  10. Ash

    Review Functional neurological disorder and functional somatic syndromes among sexual and gender minority people: A scoping review 2023 Lerario, Perez et al

    Yeah @Sarah94 they are really dusting off this old mouldy chestnut. Never too late to re-launch a campaign of discrimination and destruction against an already marginalised minority population.
  11. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I agree it’s not the fault of individual reviewers who might in some cases have done an excellent job of reviewing the evidence, on occasions where they weren’t marking their own homework say. But if Cochrane is structurally too weak to support the best evidence in every case then then it has...
  12. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Umm @Peter Trewhitt. Whether they mean it to or not. Though, I think we already know, no organisation can possibly be ‘incompetent’ enough to forget how to respond to the concerns- of patient advocate and groups- repeatedly expressed year after year.
  13. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    This letter is perfect. :emoji_fire::emoji_fire::emoji_fire:
  14. Ash

    Covid-19 vaccination experiences

    Interesting thanks, I wonder if this could be my issue too…
  15. Ash

    Autoimmune and Autoinflammatory Connective Tissue Disorders Following COVID-19, 2023, Lim et al.

    Yeah, by predisposed I mean for one thing or another, we all are. It’s definitely Covid causing sickness, just as EBV causes sickness. People are all vulnerable. We are vulnerable in the same way being human and infected with a novel and deadly virus is an immediate risk to our organs and our...
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