Search results

I couldn’t agree more with all above. Context and process. In the following sentence you explain it exactly- the questions overlap deliberately to conflate many chronic illnesses as mental illness using correlations and arguing them to be causative It wouldn’t be possible to pass this-brazenly...

I don’t think the problem is people being gullible. I think the problem is a lack of decent information and a paucity of solid options plus huge social condemnation of people not trying hard enough to get well, not willing to try anything to recover. So on the one side you have pressure to...

I was thinking about what JE says here re his observations regarding movement abnormalities in clinical practice with various different patient groups. How spending voluntary working time with ME patients well enough to attend events away from home, but not without physical toll, gave the chance...

Excellent @Trish

:rofl: But only because I feel like crying…

Very interesting @Arnie Pye thank you. They did lots of testing that most of us would be denied if we requested it and certainly would not be offered it. They found organic pathology in one guy diagnosed with CFS who had all those symptoms their profession likes to label “vague” “non...

:slugish:

As a pwLC I’m nervous about what everyone has to say about this.

sick role :yuck:

That was my thought. But I also wondered if the CC declines to act on our concerns, as they do for most, then Cochrane might be able to leverage that to some effect, to help put off others from looking at our concerns, look see they don’t have a case the CC don’t find any reason for concern. Or...

I know Myhill argued that the Polio vaccine meant people got ME rather than Polio. Because the vaccine made the immune systems unable to respond in normal ways to infection. I feel like she was picking up an older niche view rather than inventing it. I can’t be certain but feel like I half...

Yes indeed. A while back I realised that auto correct was really doing me dirty. I couldn’t work out why it had gotten worse. Then I remembered I had privacy settings turned on after a period of them having reset themselves. So now I wasn’t allowing it to “learn” from me instead of giving me...

Thanks! I had awareness of the conflict of interest inherent in this organisation set up. I also thought it would be a cross every T dot every I deal. Though I wondered whether given the fact that it is made so difficult for a complainant-even with ample justification according to basic...

:emoji_clap:

What is your opinion on making a complaint if only as a formality or matter of record before moving on to other approaches. Or simply skipping this step as it is a waste of our time?

It seems like we have more than sufficient grounds for a complaint and this number of organisations/charities, is significant. I expect the best chance of a productive response would require study of the specific criteria and conventions of the Charity Commission since it seems they have been...

Excellent point well made though thank you for sharing. I feel this one. Can’t hit the point with letters. In my case I’d add can’t speak the point with sounds, can’t quite recall the research details or other information, can’t locate this to check it. If I finally find it, can’t read about...

I think the economic decisions work more on the level of individual gain than system gains. No one actually cares about saving costs to society of healthcare, nor should they. But as healthcare administrators they do have to say that this is their goal. They must convince others that they...

Is this just for this one health authority developed by or for them or is it for any authority in the NHS to have if they so desire? I can’t read or see properly. Perhaps I don’t have sufficient will to supply my eye. Anyway, on the first link it says at bottom of page patients rate at home...

This approach from the health system is exactly the one used for decades. Virtually inevitable that we would be correct in predicting back in 2020, that anyone a victim of post acute infection from this pandemic would be subjected to the very same congealed gruel left at out on the counter at...