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It’s more annoying and less upsetting to be mischaracterised by a blanket statement from a newbie, than it is to receive this from the usual professional BPS/medical directions. But geese, is this one fully ignorant? Or just not one for history? After all…Viral persistence is a very old idea...

When I was able to attend Buddhist teaching events, or sangha with monk in attendance, we were taught that mindfulness was a powerful tool and not to be messed with. That the purpose of practicing daily was so that we would form muscle and mind memory in the good times so that eventually we...

You took acetate to see if it would make your symptoms worse?

Ahh thanks, I was imagining you could buy acetate tablets of some kind. Pretty sure I am not brave enough to try the vinegar baking soda drink. What symptoms does it help with, or is supposed to help with in theory?

When you sit to wait for someone or some bus and spend a bit of time watching people go about on the streets, and then you tune into watching the way some men watch women usually younger than them, it becomes clear that the looks aren’t always friendly or benign. That doesn’t tell you about the...

Thanks Tom! Very kind :heart:

I am so glad this project has funding. Bring on the treatments. But still there will always be sick people, as long as there are people. I find it so unacceptably tragic that any sick person should be made to take on the view that they individually are the “burden” while there exists a whole...

My god that is so sad. But I would say it was inattentive care that killed this disabled father from the care home and the daughter. Rather than her unusual beliefs.

I’d say our culture, I’m in the UK but this applies to all the colonial nations, based upon strict hierarchies, resource hoarding, environmental damage, labour exploitation, have and had a system in place to make sure that people displaced, dispossessed and ruthlessly exploited, don’t complain...

What is Oral acetate? I googled but got an avalanche that I couldn’t understand.

Also it’s often a condition of receiving support, demonstrate buy in to our framework or be considered “not yet ready for healing”. It can be very difficult for people to get decent support. BPS ideology is a slight tweak on victim blaming going back centuries, so your community will also be...

Oh my… Well it’s no wonder we’re in trouble is it? Sort of fills in some gaps in my understanding on why Drs so readily throw one another in front of the first on coming bus for the sin of getting sick. It probably comes from working in such a dysfunctional industry. Makes one mean.

Yeah. I think it’s still very common. According to statistics in UK rates were getting higher and higher over time. One hopeful explanation for this is that people are less ashamed and more confident about reporting. That’s considered certain to account for some of the rise. But less hopefully...

Glad you think it might catch your interest too. Fingers crossed a few more healthcare professionals in biomedical field will agree.

Exciting news @Hoopoe! Rest up now I guess X

Almost like it’s an assault on the body or something.

What DNA study?

Yeah, I thought that. Maybe is the rudest ‘professional’ to professional letter I’ve ever read.

Yes @Arvo, sums it up. And @Hoopoe, could be? Disabled people are more likely to be victims of violence including sexual assault. A fact that is often spun around, to come out in the form of a perverse ‘expert’ opinion that you’re disabled because you didn’t toughen up and get over being...

I like it. I like the design and I like the wording. Strong. Assuming if you look up the website mentioned on the bottom there will be more concrete asks for people, who they can contact to help push for the funding for clinical trials etc I would hope for a landing page with instructions for...