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  1. Ash

    Can’t Think, Can’t Remember: More Americans Say They’re in a Cognitive Fog

    I don’t think so @Creekside. Forgetfulness is normal most people aren’t especially worried by it. Forgot to buy milk oh well. Called someone the wrong name never mind. The dysfunction following Covid-19 infection can leave you unable to remember how to move your own arm, pronounce the numbers...
  2. Ash

    Can’t Think, Can’t Remember: More Americans Say They’re in a Cognitive Fog

    I’m not American but I’m with them.
  3. Ash

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    I forgot to add something that may or may not go without saying; Everyone performs that is part of existing. It’s a neutral. But having to perform wellness while you’re unwell in the face of a long term or life long illness is not part of routine performance levels. There are many reasons...
  4. Ash

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    This is an excellent list. Also thanks for the thread here. I wonder if it’s internal limit implementation, for survival and or to maintain function. Consciously or unconsciously maintaining distance from internal boundaries. Getting close to these a sign of having stretched too far. A...
  5. Ash

    MRI with generalized diffusion encoding reveals damaged white matter in patients previously hospitalized for COVID-19…, 2023, Boito et al.

    So scary for me and the human race so long as mass infection is the order of the day. :cry:
  6. Ash

    Long Covid in the media and social media 2023

    Good points. There was a temporary point where not endangering others was considered important by society at large. But now all the material support that would allow this, time off work, sick pay etc has been withdrawn. So now people will spread a deadly virus if it means they can get paid not...
  7. Ash

    New developments in understanding chronic illness, Nov. 8-10 Washington DC Davis/Hanson

    I know in every cell of my body that pathogens are driving the pathological processes of my illness. I don’t know if this happens in addition to other processes that would have caused permanent damage regardless, in combination or separately causing accumulated impairments. So I agree with these...
  8. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Maybe they’ve marked S4ME as spam and the block is on.
  9. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Cochrane owes us so great a dept already, that it hardly seems worth mentioning it, but nonetheless mention it I shall. What could possibly excuse such institutional impoliteness, as a failure to send a ‘thank you for your complaint. We will endeavour to respond in full within the next two...
  10. Ash

    "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences, 2023, Hammer et al

    One thing that makes me really sad every time, is when I imagine doing rehab and getting stronger and stronger. Because next moment I will realise that I’m in my daily day dream and that actually in the physical realm I can’t get out bed for longer than the time it takes me to have a pee and not...
  11. Ash

    Protocol Psychological risk factors for Long COVID and their modification: study protocol of a three-arm, randomised controlled trial (SOMA.COV) 2023 Engelmann

    Yeah at this point it’s very rare for people to have no access to patient advocacy information at all so in theory we should be able to organise a full boycott of all BPS related research. An indefinite boycott. I’ve long thought this is the way forward to protect individual would be...
  12. Ash

    Trial Report Successful treatment of myalgic encephalomyelitis/chronic fatigue syndrome using hydrogen gas: four case reports, 2023, Hirano

    Okay well that’s certainly taken the edge off of my enthusiasm @ME/CFS Skeptic, but I can’t deny at this point I still want some.
  13. Ash

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    I don’t think it’s a failure of logic on the part of patients. It might be a failure of diagnosis on part of clinicians it might be time or lucky coincidence that leads to recovery. Or social pressures that lead to perceived recovery or performance of recovery. Since it is said that these...
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