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  1. Ash

    What high-quality resources should S4ME produce for PwME, clinicians, researchers etc.?

    Agree with @Sasha and others above that throwing out all ideas and wishes rather than narrowing and limiting it to actual capacity is the way to go. So, l’d like everything please! ;) I love the method suggestion by @Haveyoutriedyoga I agree with @Kitty that something on PEM & not PEM is...
  2. Ash

    Norovirus is spreading via clothes and soft-furnishings, experts warn

    I know I am always surprised when people don’t know this, and horrified when travel YouTubers flash tiny tiny bottles (so small these wouldn’t provide a sufficient quantity of the substance to work even on own terms) of alcohol sanitiser and call it good. Spreading misinformation about. It...
  3. Ash

    Norovirus is spreading via clothes and soft-furnishings, experts warn

    That’s such helpful information @JemPD! I also use HA which I buy online from a supermarket with my groceries, and I do experience a lack of confidence about how long it’d have been hanging around before I get it.
  4. Ash

    Mystery virus plunges overcrowded hospitals into chaos as mortality 'worse than Covid' : in China, Reuters, January 2025

    We are getting higher rates in people with many known infectious agents. I guess because SARS-CoV-2 is flourishing and so we’re not.
  5. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Withering. Love it. Many thanks folks.
  6. Ash

    UK NHS: Government proposed changes from July 2024

    I’m of the opinion it’s not relevant to humanity if it cost more or less. That we so readily talk like it’s reasonable to care about the abstract concept that is ‘the economy’ over actual living people is an absolute tragedy. I did read somewhere that people dying is actually very costly for...
  7. Ash

    UK NHS: Government proposed changes from July 2024

    Well if true to form that’ll mean lecturing poor people over their undesirable behaviours, and ‘a carrot and stick’ approach that is all stick. But mostly it’ll just be blaming the different economic situation on fat people, and conflating being fat with doing no exercise, because you know...
  8. Ash

    Norovirus is spreading via clothes and soft-furnishings, experts warn

    Do you use household chlorine bleach for this?
  9. Ash

    UK NHS: Government proposed changes from July 2024

    Yes.[elderly people cost money to treat & that’s fine] I think it certainly was.[Maybe that calculation was more accurate when considering how poor public health was when most people struggled to afford any healthcare? In any case the foundational idea, the framing of money saving has haunted...
  10. Ash

    Norovirus is spreading via clothes and soft-furnishings, experts warn

    Yes I think this is pretty well known. But I wonder if this might be a bit forgotten after the promotion of hand sanitizer for when there’s no sink available during the beginning of this Covid pandemic.
  11. Ash

    UK NHS: Government proposed changes from July 2024

    Are you advocating for a privatised system over the NHS?
  12. Ash

    UK NHS: Government proposed changes from July 2024

    Yes that’s true. But usually management changes are done under a banner of cost cutting. If one healthcare service were radically to decide that cost cutting shouldn’t be priority and that saving lives should be the money could flow into actual healthcare and not be endlessly messed about with...
  13. Ash

    UK NHS: Government proposed changes from July 2024

    Money lots and lots more money would work
  14. Ash

    Chronic Lyme disease, post-treatment Lyme disease syndrome (PTLDS)

    What a lovely Papa :heart: May he sail safely & Yasmin make a full recovery.
  15. Ash

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    You’re absolutely right @bobbler. A patient usually can’t choose their physician psychiatrist, psychologist based upon foreknowledge of how safe ethical trustworthy or in fact prejudiced unscrupulous and exploitative they might prove to be as with this author. I would like to see some negative...
  16. Ash

    Open personal letter to the trustees of the UK ME Association, December 2024

    There is nothing I love more than when @Trish finally runs out of patience starts writing letters. This one happens to be perfect.
  17. Ash

    UK: Long COVID SOS News

    I can’t remember anything much about this particular organisation. Where a charity is promoting ideas that are unhelpful to people with say LC or those with other chronic illnesses, it’s usually because leadership happens to subscribe to an equally unhelpful ideology around illness and...
  18. Ash

    Bird flu

    Of course.
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