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I was recently thinking about a cat I had who was diagnosed with cat leukemia and eventually had to be put down. I'm very bad at remembering timelines, so I don't know if I adopted him before or after my precipitating infection (I inherited him from a friend), but it was around the same time. I...

I think that, as you'd expect, there's a higher prevalence in health care and education. The (late) ME nurse Keith Anderson told me there was higher prevalence around estuaries, but I don't know what his source was. You are right @Hutan, we know so little about the patient population.

It looks like participants could receive a diagnosis through the study. Are there ethical considerations about that? I'd thought about taking part, because I can't be useful in other ways. So thanks all for unpicking this. It doesn't look like it'll provide any useful information and I...

I wonder if there's a creation of a spurious schism. Faction A - the current gaslighting model works fine, no need to reinvent the wheel Faction B - we need a novel gaslighting model (exactly the same as the current one), so we can have a shiny relaunch Faction C - time to stop gaslighting...

I haven't seen all the questions, but with so many you'd think they'd be able to have the granuality needed to capture pwME's lives, but it's all so broadbrush. How about - standing - how long before you struggle - less than 2 mins - 5-10 - over 15 mins? Part-time work - that could be 20 hours...

"Yes, but with adaptations (eg aids and equipment, help from another person, more slowly than a healthy person, or using methods that involve less effort) AND/OR I limit or alter other activities to achieve it AND/OR I limit how often I do it to enable me to do higher priority activities." This...

I don't think there's a case that the genes predisposing towards ME would have been likely to be mostly eradicated. Since the prime age for onset starts in the mid-twenties, in the past and in many societies today, the majority would have started a family before becoming ill.

"Avoiding adverse reactions". I think it's a big jump to say massage is safe for pwME. We know that in very severe ME any kind of touch can be excruciating. My own experience is, that in the early years of trying anything, I had massage and reflexology (feet). Both of these made me feel...

I'm probably wrong, I haven't looked at the documents. Too overwhelmed. The announcements seem to be about replacing the all the income from PIP with vouchers or/and very minor adaptations or aids.

The minister (I've never seen him before) not getting it on severity. Starts saying some people with ME struggle with activities others take for granted - and then it's going to work and taking their kids to football matches, not teeth brushing or writing a short email. Disappointing that the...

I'm just so confused now. There's been so many consultations. This seems more about the Severe Disability Group, not about the announcements/threats over the last few days. And why do we have to provide evidence when none of this is based on evidence. I used to work with government...

"However, this finding is believed to be due to inappropriately planned or progressed exercise programs, possibly undertaken independently or under supervision from a person without appropriate experience." This commonly repeated assertion makes no sense. Patients only seem to be subjected to...

Please remove this if it breaches the rules on political content. I've just seen MPs, including the Chancellor, on TV talking about taking part in the London Marathon. They are all raising money for health/disability charities. To be honest it makes me feel sick, since many of them have...

@JemPD, I'm sorry, I haven't been online and only just saw your post. I don't want to leave you worrying. No, it's not about a starting a new claim (although that was my fear). The person on the phone said several times that they were sorry and that I'd done nothing wrong. Unfortunately, this...

The patients' responses are thoughtful, and if the researchers took them properly into consideration, they would learn something. However, it doesn't look at the CFQ's usefulness overall in evaluating fatigue and distinguishing fatigue from depression/anxiety. Also, no recognition of the need to...

I'm going to report something that happened to me, because it may happen to others and because it's weird. My esa payments stopped being paid. When I phoned the DWP they said because their software is old it can only hold so much data. When claims become overloaded they stop issuing payments...

I always have a headache of some kind, varying from fairly mild background ones to murderous. A doctor who asked me to describe them said they were migraine type, but I didn't have auras then . When I first had an aura I saw a GP, but he didn't seem interested. My auras are rare, either orange...

There's a link from Claire Fox's Wikipedia page to a Sunday Times interview from 2006 with her & Fiona. Mentions Gemma, 2nd sister, only one adopted. Was then running an IT centre for women. I haven't read the full article as it's paywalled...

I've re-edited incorrectly 3 times. Over and out.

I agree @JemPD, I was shocked too, and ME/CFS rather than cfsing us. I don't like the description though - syndromes (plural) which seems to be a bps thing, to make it more vague. Yes it may end up being several different illnesses, but we don't know that. Plus the emphasis on pain, which isn't...