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I expected a fob off, but my feeling is that the BBC sees the effects of political decisions on long term sick and disabled people as human interest stories and not political ones. Who decides what issues will dominate debate? D'oh, it's the media, of which the BBC is probably the most...

This was my level 2 complaint - My complaint concerns the then Government's intent to fund cuts to NI by cuts to disability benefits. Your response was to link to BBC Verify and some articles. This ignores my main point that the BBC failed to interrogate ministers on the impact this would have...

Reply from the BBC ECU - Thank you for your email to the Executive Complaints Unit. You complained that BBC journalists failed to question Conservative party spokesmen and women on the possible impact of proposed reforms to entitlement to disability benefits on disabled people and society as a...

Just a thought - if David Puttnam has an interest in ME, he might be able to make a TV series/film/documentary happen.

Benefits and Work have published a guide to claiming PIP for ME/CFS and a summary on their webpage...

In 2012 George Osbourne was booed when he entered the stadium and there was outrage that some Paralympians lost their benefits. I am worried that by coming second in the Paralympics (which is, of course, a tremendous achievement) the UK will be seen as supportive towards disabled and long-term...

I don't think anyone thinks pwME could safely be taking part in the Paralympics. It's troubling though that such a high profile organisation, which probably has an influence on policy, should show such ignorance in its definitions. There just doesn't seem room for nuance about...

This ignores my main point that journalists failed to interrogate ministers about the negative effects of the policy on disabled people. My initial reaction was "at least by escalating this to 1b they had pay some attention and I'll leave it there". However now I'm feeling stubborn, so I may...

I've at last had a response to my complaint to the BBC. (I failed to complain to other broadcasters.) This was the 1b stage. 1a response was tagging a piece on BBC Verify which was quite good but you wouldn't find if you weren't looking for it. To be fair I've had a lot of "apologies for taking...

Thank you for this @Joan Crawford. It took me a lot longer than 20 mins - it could have been as much as three hours in all, but it'll be shorter if you've never seen a psychologist or other therapist. I was at the end of a Covid infection, so even slower than usual. Anything to make change...

Just catching up. That's amazing and such a contrast with other organisations' behaviour. Congratulations to Trish and all involved in writing such a powerful letter, and thanks to Sonya for listening and acting.

Hmm - So, rate of being overweight is the same as the general population. Losing weight may help some non-ME LC sufferers but this isn't a healthy diet. Surely meal replacements are the epitome of ultra-processed foods, about which there's much concern. Also replacing a normal diet in this...

This seems like a positive paper. I just don't understand Greenhalgh though. Sometimes she seems to get it, but then she's so hostile to patients. I'm horrified by how she responded to you @Trish. No wonder you are upset.

All physical symptoms are signs of mental illness, but mental illness doesn't exist. Handy in getting rid of the pesky patients, but he may not have quite thought this out if he wants to hang on to his esteemed career. These musings might draw attention, and some journalists and colleagues...

A related story https://www.bbc.co.uk/news/articles/cewl59xyke9o Woman with paralysed stomach told she was anorexic

I don't like this use of 'feeling sick' in a questionnaire. Does it mean feeling ill or the specific symptom of being nauseous? I know there's the two countries divided by a language thing, but I think feeling sick is used to mean nauseous in the USA.

I do get "hard limits" when there is literally nothing. I'm on the floor and I can't move. Not only due to exertion - I can be in bed, unable to turn over. At the risk of overcomplicating, I think there are more variations. There's the Baseline Fatigue and Weakness, along with all the other...

Even referring to the patients as Mrs This and That seems old fashioned and inherently sexist. Makes me think of "women know your limits" from The Fast Show.

The SNP doesn't send anyone to the House of Lords as a matter of principle.

I'm so angry about journalists' failure to interrogate the Tory plan to take £12bn out of disability benefits to cut National Insurance payments. https://www.bbc.co.uk/news/articles/c8005jp0g71o All the debate is about whether it is feasible to raise that amount of money in this way, not the...