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https://bsky.app/profile/naomidharvey.bsky.social Cats with H5N1 in LA.

Excellent reporting from RiffReporter as well as David Tuller's article. It's shocking but not surprising. At least it's evidence of the suspected influence of the bpsers - White, Sharpe and Garner. What are Cochrane thinking? Rather than getting "conflict fatigue" they should have recognised...

It's interesting too that there's a marked difference at baseline between the GET and AM groups who attended 2 or less sessions. The AM group slightly better than the participants as a whole, while GET group is a lot worse. Maybe just due to chance, but could be a different dynamic in not...

There's a update email on the petition this morning. In addition to the IAG's letter they reference an article by Retraction Watch - Retraction Watch's article Retraction Watch acts as a watchdog of scientific integrity by monitoring the retraction processes of academic papers. It published...

Absolutely, Kitty. I wasn't criticising anyone, just saying how difficult it is for groups serving smaller populations to keep going. Yes, Trish. I think pretty much anything submitted to the newsletter was printed. I'm looking at an edition from 2022. There's reports on implementation of the...

I think the problem local groups have isn't so much funding as lack of people to fill the necessary roles. The Edinburgh group edmesh (which was affiliated to AfME) went bust recently for that reason. The annual membership fee was kept at £10 for decades. Many years ago I was at an edmesh...

I agree wholeheartedly with all of this. It's just not worth endangering the occasional contact we still have with a small number of people by asking them for donations. It's odd that no one I have rare contact with seems to think I'm very ill or not involved in normal activities, although...

Guardian article on compassion fatigue in GPs - https://www.theguardian.com/society/2025/jan/02/seven-in-10-gps-in-uk-suffer-from-compassion-fatigue-survey-finds certainly an important issue in an overworked, resource constrained sector, mentions also GPs feeling helpless to improve societal...

Fantastic. Thank you (as always) for writing this.

Excellent letter @Yann04

Another thing I noticed was that smoking/vaping was seen in a surprising favourable light. Almost a signifier of a decent character. Life changed by catastrophic illness. Looking for information, mutual support and community with others who understand online. Obviously a wrong 'un. Puffing...

Also people with ME being fully dressed and their hair combed when someone unexpectedly turns up! Inigo is supposed to have just been 'napping' but he's dressed including a BUTTONED shirt. I've watched most of it and I'm not sure the plot makes sense. Some of the characters, including Kea, only...

I think the Kea part has been improved from the book. From what I've read, in it she's stroppy and slamming doors. On tv she seems sick and sad and it's quite sympathetic. On the other hand her suddenly leaving the house implies she's faking it, like Inigo, though she's not shown sprinting away...

The Office of National Statistics is supposed to be neutral, producing data (in this case seemingly very poorly) that can be used both to devise policy and scrutinise it. The point of the article I first linked to and quoted from by John Pring of the Disability News Service is that increasing...

Sorry my last post maybe didn't come across right. I'm railing against the intransigence out there and the frustration at saying things repeatedly that no one wants to hear.

Here's the link to the ONS report - https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/mentalhealth/bulletins/theimpactofnhstalkingtherapiesonmonthlyemployeepayandemploymentstatusengland/april2014todecember2022 The Office for National Statistics is a government agency...

https://www.disabilitynewsservice.com/new-government-figures-show-key-policy-at-heart-of-disability-employment-strategy-will-not-work/ What it says on the tin. The white paper announced: “To tackle poor mental health, the leading driver of ill health-related inactivity, the government has...

https://www.disabilitynewsservice.com/new-government-figures-show-key-policy-at-heart-of-disability-employment-strategy-will-not-work/ What it says on the tin. The white paper announced: “To tackle poor mental health, the leading driver of ill health-related inactivity, the government has...

Although an amputee is allowed to reach a reckoning with his body when chronically ill people should not do that, it is only in specific ways. Eating healthily and watching one's weight is a good thing, but could apply to anyone. It's not going to grow his leg back. He doesn't seem to be...

If Strike is JKR's mouthpiece, it seems clear developing ME doesn't fall into the category of "heavy blows of fate" or is seen as the reason Inigo had to give up work, so not really of significance in anyone's life. The last paragraph seems very economically conservative. It's well-known that...