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    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Moved post What fresh hell is this? ME Association promoting an app sponsored by the DWP and the DHSC for people with LC, ME/CFS, FM etc. -
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I'm trying to read through the Green Paper and take notes pre to completing the consultation. I've sidetracked into looking at the DWP research paper...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I'd posted earlier about my MP never replying to my emails. I thought I'd try one last time. Among other points I highlighted the #TakingthePIP campaign (such a brilliant slogan). To my surprise I got a reply and extensive one. Whaddayouknow, she's enthusiastically in favour of it all. She...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Chart from the Resolution Foundation on impact of the cuts on different households - https://bsky.app/profile/resfoundation.bsky.social/post/3lqevx4y7nu2i Doesn't include under 22s, households with kids or pensioners. Agree with the excellence of Jay Watts.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yeah, I have done. It's a lost cause, but disappointing because she actually invited me to discuss things with her. (My emails covered ME issues as well as the DWP.) Congratulations, though, to anyone who managed to elicit positive responses from their MPs.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, that's true, but the bit about "Labour is committed to championing the rights of disabled people and to the principle of working with you, so that your views and voices will be at the heart of all we do" suggested something very different from what's happening. They haven't done any of...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I didn't apply for PIP until 2019. I'd been ill over 30 years. I got the form for DLA once but found it more than I could cope with. I lived on ESA and it's predecessors. Now ESA doesn't cover my basic bills and food, so I'm not surprised that one of the reasons more people are claiming is...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I found that article confusing. Are they talking about the existing consultation on the Green Paper or a new process on the changes that weren't being consulted on up to now? Kendall said she would invite disability campaigners and disabled people to be involved in the implementation of many of...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I thought Timms had just pulled it from the air but apparently it's from the OBR - As has been referenced, we have published data that shows that just over half of those who claim PIP today scored four points in one daily living activity in the last PIP assessment. Understandably, as we have...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Also the consultation has been proceeding farcically with a data breach and then participants unable to log in to an online session - https://benefitsandwork.co.uk/news/blundering-dwp-shares-email-addresses-of-all-green-paper-consultation-event-participants?utm_source=iContact&utm_medi=...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    There was a lot going on on Wednesday. Session of Work and Pensions Select Committee with Ellen Clifford for DPAC, Disability Rights UK and Scope giving evidence, followed by academics. https://committees.parliament.uk/committee/164/work-and-pensions-committee/events/ Then the debate Diane...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    This is unbearable - I think they just want us dead. Also they're massively cutting Access to Work was to have been operational from today, but there's reports of a pause -
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I don't mean you shouldn't be meeting her and Stephen Timms. It's great that you are. Just a heads up on J P's position. It's another blow that the head of our APPG has this attitude. Thank you for the work you are doing. :heart:
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, I don't know why Steve Topple has lumped your survey in with the DWP one as problematic @JellyBabyKid. A btl poster on Benefits and Work is a constituent of Jo Platt and had contacted her about the benefits cuts. That poster said J P was very supportive of the cuts and it had been a waste...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    That said, I did get points for going to the loo and taking medication which got me over line for enhanced DL.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    @Tom Kindlon reposted this. https://bsky.app/profile/tomkindlon.bsky.social/post/3llsbu5mhes2o The poster has a friend who's a PIP assessor. PwME and LC unlikely to receive points other than cooking,washing and dressing. It's really bad, but at least we know what we are up against.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Really good, @Robert 1973 and Hutan's suggestions. Is it worth mentioning the international reach of the petition?
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I think this would be worth doing. A parliamentary question gets it on the official record, and politicians and the public would see that Cochrane hasn't acted professionally, fairly or within its remit, without necessarily having to have knowledge of the specifics. Might also be worth asking...
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