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This is a few years old, so I am hoping you did get everything you wanted! I am interested in getting a couple of CT scans re-analysed so curious about how easily that data is provided by the NHS.

I find this question really intriguing, irrespective of it's relevance to ME (or long COVID). I don't have the relevant background to do more than speculate, but somebody here must have some idea, surely?

Thanks. I'm not about to talk about my PENE. I think in the UK it might be confused with talking about flowers if anything rather than invoking laughter! This idea of not provoking neurologists seems quite quaint to me. I certainly hope some are lurking here, Long covid should have piqued the...

The Scepticians of ME/CFS. If the meaning of a word has become lost make up your own!

I may have missed a joke there?! I wanted to emphasise the Neuro aspect of my malaise, some have used that term I believe. Honestly don't have any preference for naming. All the acronyms have bad associations for myself now!

I jumped onto this thread without really explaining my reasoning very well, so apologies for any misunderstanding. I am not trying to get away from the concept of PEM, definitely suffer from a form of post exertional malaise but in my case what is very apparent is a nervous system overload...

Years ago when I first got ME I had a symptom I found very strange, unlike anything I had experienced before. I became aware of the term PEM, from the ME literature presumably, and assumed it was describing that symptom, as it was post exertional. Later I realised that many pwME used the term...

I think Trish's definition might rule me out TBH!

There is a clear definition of PEM?

Yes Dermol 500 claims to be antimicrobial, but that's rather a vague claim. Probably better than just using water at least it might disarm some of the viruses about. Probably need to use gloves more as well to be safe. That and masking, bit of a palaver!

That's useful to know but not very practical if you can't use soap or detergents!

fine day so I went into local shop. There is a limit to how much cleaning products I can use. Especially when it comes into contact with skin. Is norovirus more likely to be spread though contact than droplets?

Seems easier to just keep my rubber gloves on. Using a touchpad is a bit sticky, but better than I would have expected!

I think this is true for myself but I don't know if it is ME or some pre/co morbid condition I have. I sometimes catch myself in the mirror and it's almost the Parkinsons mask like face. Inexpressive and rather miserable looking, I have no doubt it puts people off wanting to engage with me. As...

I don't know if this is too off topic, but has anyone here definitely had norovirus this year? I have been feeling very weak and nauseous past few days. Wondering if I have a mild case on top of ME making me feel pretty dreadful. On the other hand I seem to have episodes of this feeling coming...

Has anyone proposed excess glutamate to be associated with PEM? That might fit with my experience of what I call PEM and what I find effective to lessen it's awfulness.

Is there a thread more related to this subject? Even though I would put the most obvious triggering event for my illness to be glandular fever, I have often wondered about the effect of a car accident not long before that.

If you like, but I think the discussion is more useful than the numbers, to me at least!

Sorry to be a pain, but what exactly is meant by breathless here? I have been getting very tight chested recently in association with worsening health. My sats are normal according to my oximeter but it is unpleasant and I don't remember this being part of original ME symptoms myself. Obviously...

How does anyone actually know they have a cold, other than having cold symptoms? Symptomatically I feel like I have a perma-cold, or more honestly, very frequent cold type symptoms.