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Adhesives on things like that is one ofy life long allergies Not long ago I had a 24 hour heart monitor and made sure they used "hypoallergenic" sticky bits. I spent the entire 24 hours thinking only about not touching them and feeling like it was driving me crazy. Itched a week after.

That's probably wise seeing as my GP barely knows what to do with me now with this and hypothyroidism. I end up self testing and insisting on appropriate changes as the GP thinks everything is always fine.

The only tests I have had are blood tests and heart tests then they go oh well let's see if it will adjust back. Supposedly mine was virus triggered (not covid) , which has made me worry about viruses now. And most of what I have learned that triggers my symptoms since I have figured out...

I have pre-existing allergies and sensitivities, and have been lactose intolerant since becoming hypothyroid. But I have something I don't know how to label, allergy? Sensitivity? The thing is it's shifting. For a couple months I was allergic to most toothpaste (rash mouth sores), then it...

Well, I am totally up for someone running tests that actually give answers but it doesn't seem that is something anyone is bothering to do.

I was told it is dysregulation of the autonomic nervous system. I was also told it would go away and it didn't. A few symptoms went away like spontaneous vomiting and intestinal stuff. But tachycardia and palpitations haven't and neither have the stress responses physical or emotional. I also...

Thanks. I find it hard to find information or a community to help understand dysautonomia better because it seems most communities form around POTS.

I'm not really sure where to post as this topic is orthostatic intolerance and I see mention of POTS, I believe both are types of dysautonomia (POTS definitely is). Until recently, I didn't know that dysautonomia was part of ME Cfs or commonly comorbid. I have dysautonomia but not one that...

I get PEM in what I call a few different arcs. This sounds similar to one I get on good days. On these days I can go out in my normal pacing level and might do a bit more. As long as I don't sit or lay down I feel ok. Soon as I sit down I feel aches and stiffness creeping into my muscles...

Is PEM only a ME/CFS symptom? I mostly read that it is but occasionally read it isn't. I haven't had my cfs assessment yet (waiting list), but it's the main reason I believe I have cfs. I feel 100% confident I have PEM. I also have other symptoms but some are harder to separate or overlap...

That makes sense. I often have a sore portion of my arm. Not exactly my shoulders but the maybe 4-5 inches coming down from it. It's definitely muscle as, at the end of the day, pressing there also has a lightly bruised feeling on top of aching.

I don't know. I assume doing a normal amount of swinging one arm and I lightly hold the bannister with the other aa I have slipped o carpeted stairs several times.

I read in a thread that some people find 30 second burst of high energy exercise helpful. I hadn't heard of that idea before and decided, why not give it a try to see if I am one of those people. I'm not. Anyway, didn't give me too bad of PEM. Most of it reared yesterday, today it's mild...

I decided to try the 30 high energy activity since I'd not heard of that one and worth a try in case it suits me. It doesn't.

I've not even thought about a placebo effect. I'd like one too. I try a lot of things after hearing great results for others and then feel nothing myself. My most recent is I got my vit D up to a great level.. Obviously healthwise that's better, but even that didn't give me any improved feelings.

Yes, that was me. I was trying to keep my job that I loved. But then got worse and was off 8 months before I resignedm

In your post you touched on something I have beem thinking but not in specific words. That is if prolonged pushing of PEM can make you worse. I still undiagnosed with cfs (waiting) and its been about a year and a half. Everything eaw being blamed on thyroid issues so I felt validated...

In my experience, the NHS jumps directly to "anxiety" before even considering the rest. For example, my dysautonomia started in April 2024. I was too ill for two months to see a GP or think straight. When I did the first asked me why had such medical anxiety. I replied I don't when symptoms...

I'm not surprised by this at all. Last year I was referred twice and both times I backed out after filling out the forms/survey thing. It was obvious from the questions they wanted to solve a very specific issue and it didn't even take into account personal situations like chronic illness.

I was using just a bottle brush to clean them but discovered these tablets that work so well. https://amzn.eu/d/1cPAKhU