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  1. PrairieLights

    Clock changes disturbing sleep in ME/CFS

    That affects me much more. For sleep I am tired all the time anyway and the clock change just feels like a bad day which happens randomly anyway.
  2. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    If child benefit is paid to a stay at home mom she gets national insurance paid during that time.
  3. PrairieLights

    T3 treatment for hypothyroidism

    Responding to a deleted post I think all three of my issues must be linked somehow but I haven't proof... either that or I am weirdly unlucky.
  4. PrairieLights

    T3 treatment for hypothyroidism

    I only know two other people with hypothyroidism in person. Neither of them ended up so fatigued they couldn't get out of bed. One of them has hashimoto's one doesn't.
  5. PrairieLights

    T3 treatment for hypothyroidism

    I am actually not sure. My timeline isn't usual according to my GP. I had been tested several months earlier for thyroid when I had a mix of symptoms including what, looking back was like very mild PEM. I had no thyroid issues so they agree to start me on hrt. I'd say the fatigue was still...
  6. PrairieLights

    T3 treatment for hypothyroidism

    My endocrinologist said normally the lowest dose is 10 but mine is 5 due to dysautonomia.
  7. PrairieLights

    T3 treatment for hypothyroidism

    I have been on my very small dose of T3 for two weeks now. It's been a challenge for my dysautonomia so far. I am supposed to introduce a second daily dose at 4 weeks but I don't think I will. I think I need to go slower than most with this. I know my T3 level is lower than ideal but I think...
  8. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    We just finished the process for AA for my father in law, couldn't possibly have been easier.
  9. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I thought that too. Got the energy to dig up my pip papers. I am at least relieved it isn't review at two years as I swear they told me, but February 2027. Though says update if better or worse but I don't dare say worse as that triggers an early review.
  10. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I am listening t parliament talking on tv. There is so much talk about enabling people to work... I wish someone would point on what they really mean to say is they don't believe sick people are sick. They think taking away the money will suddenly make people no longer sick. It's so...
  11. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I was shocked when I had to get repeatedly signed off for 8 months. I just said I needed it online and got it with never even being questioned. This is definitely something that should be changed. Not every GP "knows" the patient and there should be at least some form of contact.
  12. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, I don't believe that is universally true. I have been off ill for 11.5 months now (resigned from my job). Not all my fitness is gone. If there was an emergency I could run a bit or lift something heavy... But I certainly can't do either as part of my day as it would involve my body...
  13. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    It's funny you mention marathons. I actually read in some cfs article who knows where "and some people can run marathons". Who? How? These can't be average people with cfs. And it absolutely feels like that's the reality with assessments.
  14. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    My cat is the thing that makes me get up when I wouldn't otherwise but I wouldn't mention that.
  15. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    When I did my first one I thought being totally accurate would be understood. But instead they picked out little things and drew conclusions from them that weren't accurate at all. For the mandatory reconsideration I researched how to use language appropriately specifically for PIP...
  16. PrairieLights

    Sore throats swollen glands

    Me too, it's often one more than the other
  17. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I use aids for medication and supplements, daily pill boxes, alarms that list exactly what to take. And still I sometimes take the wrong thing.
  18. PrairieLights

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I worked with children who will never be able to do job training or have any sort of job no matter the reasonable adjustments. This new thing about not qualifying for health benefits between 16-22 but instead all sorts of job related support.... What happens to them during those years? Their...
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