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I've only read the title so far and feel it's biased.

This is such a widespread issue. We don't get to deal with our conditions one at a time as needed... why does everyone we deal with think this is a reasonable way to deal with us?

I can't even figure out what I think I belong on my own interpretation of scales. I think I have it figured then read someone's post and they call themselves something else but are describing something I deal with.

I was really upset and worried about my WCA thinking it would be like applying for PIP. I had a form to fill out then waited a few weeks. Had a phone interview where they noted my symptoms and that was all, then another wait. Edited to add, I got universal credit BEFORE the WCA

Yes, I had this, I had to go in. Then they called me on the phone twice a month until the wca was done. After that, no contact st all.

I got a letter from PIP yesterday and it gave me such a panic seeing the header. Turns out its just going up by something like £2 a week. They've made this so stressful.

I don't view it as part of my me/cfs symptoms either, definitely comes as autonomic dysfunction for me. Beyond that, I think of it as a fear/panic/ptsd response that is instinctual, definitely not just being stressed or unhappy with stuff. I also think adrenal issues are different but I think...

Do people actually have a baseline that is consistently the same every day?

I have heard of building your base as the same as pacing up.

Could you define what you view as fight/flight/freeze maybe? My experience is along the lines of what you have already discounted above. I have dysautonomia and fight or flight feelings are a big part of it. The tachycardia is only one part of my dysautonomia and not what I would point to as...

I was just trying to do some googling and google misunderstood me saying behind the knee. So, wanted to clarify here in case you guys are thinking like Google. I am not meaning behind the knee cap but the back side of my leg/knee bit.

I feel like my knees are different than other parts of me. If my hrt is off my knees and ankles go but in a different way to how my knees have been these couple months. Other parts get more sore in proportion to doing stuff... or in response not necessarily normal. The knee thing feels like...

I'd likely not bother finding out. I waited out butsitis in my shoulder for 2.5 years for that to pass instead of bother.

So, do you just shrug and get on with it? I rarely bother to go to the GP about anything I perceive to be muscular as they only say take ibuprofen.

So, if it was this cyst would I have a lump or a sore spot when I press on it? I don't have either. It just starts to hurt or get stiff when laying down, sitting or having it bent, it lessens stretching or moving around... but as I stop a lot it keeps reoccurring.

I found studying this lady's YouTube channel essential for wording answers. https://youtube.com/@charliesjourney?si=xUKrhx-FbmOBKIQh

When I got my PIP, it was right before the tribunal. Technicallyy only listed conditions at the time were Hashimoto's thyroiditis and adhd. My answers showed a lot more struggles and other stuff was yet undiagnosed. The reason I was given on the phone for the caseworker deciding to award...

It doesn't feel like something in the knee joint...I want to say muscular like but it doesn't follow all the way along a muscle, stops short. I shall read about thickening, never heard of this.

I tend to only sit on the bed or sofa and usually splayed out or knees pulled up.

I cannot figure out what is causing this bit it's been easily over a month if not two. I haven't paid attention to when it started as I assumed it would just go with rest. I am positive it is not hormone/hrt related as that is different and more joint not back of the knee. It's not like the...