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I know something is in mine too as GPs that are not mine say let me just read your notes then look up unable to listen anymore.

Me too. I know specifically what triggered it but it was gradual like I was a giant sand timer and my energy was slowly falling away.

That's a great title

I don't know the workings or how me/cfs affects this... but I feel I am having issues in this area too.

I do like a few of the details mixed in this mess of a PIP change, such as: -the severe people or those with unchangeable conditions never having to be reviewed again -actual good support to tackle obstacles to employment for those for whom that is appropriate -people being able to have the...

I loved my work so much and still grieve over losing it. I definitely would be there if I could.

I wrote my MP about the proposed PIP changes a couple weeks ago. My MP is conservative though. I got this reply: Many thanks for your email to Alison. I’m very sorry to hear about your concerns regarding the implementation of these changes. Alison has heard from a number of constituents who...

I was listening to the news today and it was a brown haired woman from Labour speaking. She seemed to be implying the benefits make people unable to work and now those people would be saved with the changes. I was really mind boggled by that idea. I would LOVE to return to the type of job I...

She mentions people who improve and thus explains aspects of me/cfs. How do we even know immune activity increases pr decreases if we can't even find tests for what me/cfs even is? Also her step count... that's one way I monitor my general wellbeing by looking back at the week or month. I...

I don't know. It wasn't mentioned to me and I didn't think to ask. I was more focused on feeling heard that I didn't ask extra.

Not just for me/cfs, but I know a lot of people with disabilities who have discouraged and never applied just based on hearing how hard it was.

So today is day 3, only had my first dose today about half an hour ago. I know there are adjustment periods for medication, but I am already wondering if ivabradine is working less well than bisoprolol had been. I am not going back to bisoprolol due to it being the suspected cause of my...

Thank you for your experience. I was precribed ivabradine twice a day at 5mg which is supposed to be the equivalent to the bisoprolol I was on. I am leaning towards cutting the pill this evening and taking half as the evening/night is my better time of day. Will see tomorrow if the same...

Oh yes. I don't need advice but hearing others experiences gives me a sort of way to adjust my expectations.

I have tachycardia from dysautonomia (not POTS). I had been on bisoprolol for several months. Today is my first day on ivabradine. Nothing alarming happening or anything but I can feel differences and my heart rate is following a different pattern of ups and down than I am used to seeing. I...

I read this this morning. My first thought was not being believed is the root of most mental stress dealing with DWP.

Yesterday, I was talking supplements with someone who said I shouldn't take calcium unless I am testing regularly as you can have too much. I replied that if I don't take it my levels drop below range. Then they asked if I had parathyroid issues to which I said no one ever said I did. I have...

I use the pill mill and cut tiny and large with it. https://amzn.eu/d/fZAH3Q1

I have stuff like that too.... was briefly allergic to other toothpastes when mine was discontinued... but now I'm not. My lips only broke out in rashes when touching plastic. So gave up plastic water bottles, no idea of that went away as now I paid for glass and metal so those are staying...

Yes, I have pleasant written in two letters from two consultants We'll see what the next letter says... next week I am going to challenge the first letter as being inaccurate. Haha