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My OI started after hip replacement surgery. I’d had mecfs for many years before that, with low normal blood pressures, but whatever happened in this major surgery resulted in a disabling problem with hypotension. I imagine it was the anaesthesia’s effect on the nervous system, which I have...

Many doctors respond to a minimally understood story by ordering a bunch of expensive tests. My experience is that these are almost all useless because as Dr. Edwards says, they don’t know what they are looking for. Then when the results come back negative, the conclusion is often jumped to...

I use a boric acid eyewash I make myself and keep cold in the refrigerator. It feels great, adds some lubrication and kills or suppresses germs. I have had dry eye problems for nearly as long as I have had this illness, and they have resulted in recurring infections until I remembered how my...

I concentrate to try to improve my walking but still wobble and weave a bit. A couple of times a bicyclist, who should never have been on the sidewalk but who stops these people?, nearly clobbered me. The cyclist came suddenly from behind but was gauging his course, I guess, by the perfectly...