Search results

Thanks, Alex. I am remembering an insult from childhood was “Thick head”! Then there was “Numb skull” and a few others. I laugh at myself and go on. Wouldn’t be surpised if there weren’t something like this happening inside...

Did you mean to write instead, “the left hemisphere equivalents are working” since they aren’t thickened?

Alex, what are your guesses about what this thickening means? To start with, does it necessarily mean that the nerve conduction is slowed down, impeded?

Ron Davis’s leadership is so good, not only his skills at designing good tools and studies—I am very appreciative. He knows where he is going, the next steps that will be needed, and has the project designs lined up or working at least on small scales already. My impression is that he and his...

I have tried Bromocriptine, which slows the breakdown of dopamine, and also tried a stimulant, Methylphenidate at a low dose which doesn’t overtax my system, and my conclusion is that the methylphenidate offers a degree of help for cognition as well as hypotension, but the Bromocriptine doesn’t...

I loved your description, @Arnie Pye ! Thank you so so much. It is a rare gift to have a glimpse into the actual experiences of those of us with this hidden, unknown condition. The intransigence of your sleeping problems is a key feature, in my view. It is of course worth trying to bomb it into...

I have no direct information about lactic acid in my brain, as @Valentijn relays, but wonder if certain physical sensations I have in my brain might be a result of a build up. I too get a swollen feeling when my brain has been overworked. A swollen, overpressurized sensation that tells me I am...

Seems to me that this particular research would be most revealing if it were done a couple of days after a big exercise challenge.

I succeeded in learning “pyruvate dehydrogenase” after that exciting study happened, but now I have to learn an even worse term “right anterior arcuate fasciculus”, along with terms for other brain structures. At some point I may be batting such words around easily but my first response is...

Yes—and this is where I think it is a slowed down brain that can’t make those connections at speed—from the normal speed of conversation to the normal speed at which we need information of whatever kind to complete a task, do it safely, competently and all that.

Damage to the reticular activating system where dopamine largely comes from, I once read, may be the cause of a slow brain, “brain brownouts”, according to Dr. Richard Bruno. This damage could have come from an enteroviral infection, for example, and could also include the neighboring...

Brain rhythms convey a lot about what the cognitive and memory functions can even be. Beta is the high speed (not alpha as I’d expect). That is what employable, competent people are supposed to be in or able to go into during the day. It isn’t just that with many of us, all functions are slowed...

One idea I don’t find in this thread is about brain rhythms, speed and activity. Having a lot of EEG studies would help, and for those to be designed by people knowledgable about our condition. Was it Zinn, presenting in Stanford in 1916, who had done some research like this? I had some EEGs...

Talking in circles with generalizations, dodges, omissions and misdirections is what a lot of people who succeed politically are skilled at. His position is a political achievement. He functions as a politician rather than a doctor or scientist. He is skilled at confusing people so that before...

Oh, thank you! I had a small guess that might be it but since usually things on forums tend to be spelled out, I thought I must be missing something. I am really looking forward to the interview and appreciate that we had a chance to brainstorm questions ahead of time!

Excuse me for being a dunce, but today is Jan 16, 2018 and I see no information about how to either access this interview today or later. What am I missing?

I want to comment about Dr. Bell. His commitment to learning, understanding and helping those of us affected with ME has been outstanding in my view. This question, about what realistically is the long range prognosis is very important. A lot of people might not have wanted to “look there”...

It seems as though the smaller fiber nerves are being damaged. After the nonmyelinated small fibers, the next smallest fibers belong to the sympathetic nervous system—that very useful capacity for fight or flight, adrenergic action. Considerably larger fibers, I have been told, are the...

I have had a very difficult problem with OI for 8 years now. It involves a slow heart rate which does not try to compensate, as with POTS, for the hypotensive state which makes it an increasing struggle to stay standing until I have to get my head way down to begin a temporary recovery. If I do...

Smoking--I expect it reduces oxygen to the brain through impairing blood vessels or? That may be its negative effect. But on the positive side, nicotine increases dopamine, helping neurotransmission. I think of the well known singer-songwriter Joni Mitchell who was partially paralyzed as a child...