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Perhaps, but if we have a general idea in some countries like the US and Great Britain, I would hope there would be at least a few others that have similar estimates. I did find this one, but it doesn't seem to be of very high quality: https://www.jkom.org/upload/33-2%2003(25-33).pdf

Thanks @Joh. If I knew the rates I would certainly be willing to add to the content. I've searched via Pubmed and Google scholar, and haven't found anything...yet.

Does anyone know if they're planning to add a section on worldwide rates of ME/CFS? I see there's a section on diagnosis and treatments for other countries, but I couldn't find an overview on comparative rates of illness...

That's why it was free (and has been at times in the past), as they're trying to 'help us learn about how your sniffles relate to your microbiome.'

I would probably try the other one first, but before that came out, quite a few people were using the Bactoferm on the lacto-bacto site, apparently with success. I hesitated not only because of zilcho $$ in the cookie jar, but because yeah...it just seemed like I might start making my own nasal...

This is one that's also recommended and used by several from the lacto-bacto site. It's sold for making sausages(!), but contains the same l. sakei (along with another strain).

It's my understanding that it has to be taken regularly in order to be effective. Not sure if that means daily, but it's found in healthy sinus passages, and I would guess that if your nose starts running more than usual or you sneeze a few times, that may reduce the number of bacteria and might...

I've had a bottle of Miyarisan in my cupboard for 8 months, maybe longer. Was about to take it when I read quite a few reports of worsened constipation, which is already a problem w/me during the last 2 years or so. I'm guessing you didn't have that issue @adreno?

Sorry I missed your reply. Yes, it definitely seems to be more apparent in low light...

I guess if one looks at it as a form of sensitivity to light, then perhaps it could be considered one of the many symptoms of ME. No doubt it happens in the general population too, at least as one gets older. HA! :laugh:

No one else? Just me? :)

I'm really sorry this has upset you so much @Gingergrrl. That certainly wasn't my intention, nor was it my intention to put words in Whit's mouth. I was just trying to make a point to @Perrier who seemed to put so much of his faith/hope on that one drug. I feel protective of him too, as I...

Thanks @Melanie. Yes, it's weird. Only lasts a 2-3 seconds, but is definitely pronounced. I started taking riboflavin a few years back, which helped with sensitivity to bright light (a symptom of riboflavin deficiency). Not sure if I can tie in this 'afterimage' stuff to starting the...

I took this (weird) photo of a roll of toilet paper sitting on top of the toilet and tried to use photoshop to duplicate what I see. I wasn't able to match it exactly -- it's like this reverse 'ghost' image -- but hopefully you get the idea.

I've had this odd symptom for about 4-5 years. If I look at anything darker -- or lighter -- than the surrounding area, even if it's in a relatively low light environment, and even if it's only for a few seconds -- then look away, I'll see the 'afterimage'. If I glance over at my walker or...

Yes, I saw on another thread that one of the moderators said it's okay to post links to the other site. Okay, Whit's post from 'the other site'. It is also worth noting that it looks like he was prescribed a CPAP machine, and also thiamine injections (which had no effect for him), so there...

Good points @Gingergrrl. Of course we don't know if he would've declined without Rituximab. But the difference before and after is so striking, plus he himself did say in several different posts, that 'such and such' was worse after starting the drug. Since links to the other site are...

I'm so sorry your daughter is suffering @Perrier. It's worth noting however that Rituximab was the drug that made Whitney Dafoe much, much worse. He said as much in his posts on 'the other forum', that is, until he was unable to type any longer, and had to have his caregiver type in his final...

I'm not sure if this question has been asked and answered, but I thought there was a gag order or some such restriction against talking about the study until it is published next spring. ???

No, it's been awhile since I had them tested, although I believe the last time they were within normal range. But as Rich Vank used to say, I could still be functionally deficient, and after reading several case histories where patients were misdiagnosed for years with things like MS, when all...