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I believe that's all we were trying to do too -- tell her if they 'might be a part of ME'. And it might, according to the Canadian Consensus Criteria. I didn't see anyone diagnosing her, but I could've missed something I guess.

I think it is. I'm not sure what definition you're going by, but the CCC states "Ataxia, muscle weakness and fasciculations are common"...symptoms, that is. Could be in one's arms, in one's legs, or in one's entire body like Whitney Dafoe's or Jessica's, the young woman completely bedridden who...

Well, not exactly new, but the 2016 study from our friends in Norway... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5161229/ "Analysis in 200 ME/CFS patients and 102 healthy individuals showed a specific reduction of amino acids that fuel oxidative metabolism via the TCA cycle, mainly in...

If one loses muscle, as I and many have, and as was demonstrated in one of the recent studies (by elevated 3-methylhistidine levels in men), then I would call that degenerative. Might not be permanent, but my muscles have certainly degenerated. And one of the things that increases...

That could be true, provided one has sufficient acid production. But many of us unfortunately have hypochlorydia. :(

Just wondering if anyone's tried using any binders -- like bentonite clay or activated charcoal -- to try to stop the vicious cycle that may result from the constant post-nasal drip that happens during an infection? I'm not sure if either actually helps or binds to mucus/pus/infected matter...

Seems to me the name used most frequently about 10-15 years ago in the USA was CFIDS (for Chronic Fatigue and Immune Dysfunction Syndrome). I always thought they could take the 'F', and then we'd have Chronic Immune Dysfunction Syndrome, which IMO wouldn't be too bad. Or at least not nearly as...

I would add, kind of along the lines of what @Milo was saying, that it may be hyperglycemia, or something close to that. Carbs give me more 'energy', but I have paid the price with worsening pre-diabetic-type issues, and more napping after meals. I am trying to increase fats to both balance...

I agree with all your points @Valentijn. My only, tiny -- and selfish quibble -- is that they didn't feature any patients dealing with this by themselves. But overall, an excellent film, and the cra-cra opponents of the film and Jen Brea's efforts should be ashamed of themselves. Now I'll have...

There's a possible connection between salicylate intolerance and nasal polyps. I have a few polyps and a possible salicylate intolerance -- at least to certain high-sal foods. Here's an overview: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2696737/ "Rhinitis, asthma and nasal polyposis are...

Yeah, it's really tricky because there can be so many different factors, not to mention the concept of cross-reactivity. Anyway, FWIW, here's a good overview on probiotics and allergies: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3784923/

A good example of this is the failed retroviral hypothesis that Judy Mikovits to this day continues to peddle, even writing a nonsensical book claiming that "they" stopped her research because she found the 'truth' -- that retroviruses were/are causing ME/CFS, fibromyalgia, autism, MS, ALS...

If it appears around a certain time of year it may be related to some allergen or allergens. Perhaps not the outdoor ones, but indoors like dust, dust mites, etc. If you have to keep your windows closed more because of cold weather that might be the case. I tend to agree w/@Allele -- that maybe...

"Too much" for one person is not enough for another. This is no 'one-size fits all' illness.

I would certainly give it some time, and try different methods as @Webdog has done. After 26 years, it'll probably take awhile to start to see any significant improvement, and it's my understanding that it needs to be taken on a regular basis for improvement. There's also l. plantarum (and I'm...

Any updates?

With all due respect, I'm not sure what you're trying to suggest -- that if only they had had biomarkers their results would've been better and that would've attracted a partner? They've been (almost) exaggerating the drug's effectiveness for years without bringing up this biomarker issue...

Hemispherx has been around for 30+ years. If their drug(s) are so amazing and have so much potential, why in the world are they still a 'tiny biotech'. Could it be because the former CEO manipulated the stock price for his own gain over and over and over again (which is why he was fired), or is...

From your resident Hemispherx grouch: The new CEO and his team have been in place for 18 months. In the linked video, at 12 1/2 minutes in, the CEO talks about the amazing changes that have occurred in that time. Along with those listed above, note the one near the bottom of the list...

Brea makes so many excellent points, but the following is the most powerful IMHO: