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I'm a bit new to this so having dug a bit further there's a bit of history, taken from here. Looks like the latest in a long line of similar 'treatments'. Haven't looked at any of the papers that are referenced. "Dr. Enlander Dr. Enlander used Kutapressin for approximately 12 years until...

There's virtually no web presence for K-Pressin. All I could find was this thread and this trade mark information, which shows it was raised in Feb this year. https://trademark.trademarkia.com/k-pressin-88296207.html

Hopefully this hasn't already been linked to, ME Research UK are asking for votes to secure a research donation [ETA: actually it's a £10k donation from MultiLotto]:

If only I was in that age bracket! Add on 20yrs and I would just squeak inside the top bracket. :nailbiting:

@DokaGirl thanks! Some reading to do there. :)

I've nothing to add but am also interested. I suspect the problem with any data will be the definitions of ME in the first place, coupled with the subjective nature of what recovery is to each individual. Will watch with interest though! :thumbup:

I work in an engineering field for a large European company. When I joined (20yrs ago) the ratio of men to women engineers was heavily biased, as you might expect. The approach that has been taken in the intervening years is the correct one, in my view, in that the women who were in the...

This is an interesting thread. In the real world I have experience of applying for research funding for engineering technology research. The overall budgets are a bit less than those described here (<£500k) however a key part (in my area) has always been understanding the interests of the...

Merged thread On the #MEAction SW Facebook group a post by Carol has been shared. I couldn't work out how to link to it directly, so have cut and pasted the text below. I thought that the community on here could probably give some useful feedback, based on some of the recent threads. I...

You're right, in that Smartnutrition are taking a slice of what you pay for the test to be performed. But if that is what the OP wants then they are a potential provider. As to whether there is benefit in all the tests that they (Genova Diagnostics) market I don't know. Some appear to be the...

I've not longed at the regenerus site so am not making a comparison. I used this company: https://smartnutrition.co.uk My understanding is that the lab they use (Genova Diagnostics) is reputable, although I'm prepared to be corrected! Going via smart nutrition meant I didn't need a gp referral...

It's hard enough to cope with ME full stop. I cannot comprehend having to also contend with being homeless. What an awful situation to be in. :(

@Wonko :laugh: I love your sense of humour! :)

The only longterm supplement I've used (am using) is Vit D as the GP blood tests showed I was deficient. At my level of supplementation I'm now in the expected range. I was interested in the ME Association advice on supplements, and whether research had built on that at all. Particularly with...

This relapse has got me looking into dietary supplements again, partly spurred on by the ME Association pamphlets on them. These make reference to some scientific studies but they appear quite out of date (old references). Whilst looking for papers that might report on more recent studies I...

@Arnie Pye the Dr in question is the most unsympathetic and unempathic GP I've ever met. Fortunately, whilst he's 'my' GP I can make appointments with others at the practice and have found one who is most definitely on my side and isn't bought into the BPS cult.

Just as a quick update, I stuck with the amitripi-wotsit for another week and then took myself off it. My sleep then got worse and I realised that a lot of the pain in my legs and arms had gone away whilst I was on it. My HR hasn't dropped so it wasn't causing that. I'm giving it a few weeks...

Thank you @hellytheelephant. Also hope you improve soon. I've subscribed so, as a relative newbie, I look forward to reading more wisdom in the future.

Has anyone found a source of the Efamarine that MEA used to sell, or an equivalent with the same make up?

I'll keep my eyes peeled for that then as my wife is a secondary teacher. I'll ask if she can circulate it to her colleagues as well. Thanks.