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  1. Arvo

    United Kingdom: ME Association governance issues

    Those are important questions. I made a screenshot (quicker & easier for me atm) so it won't get lost if X implodes:
  2. Arvo

    BPS/Psychosomatic Theories and Sexism, discussion thread

    Btw, I had just looked at a 1980s psychosomatic conference where at least four of the talks were about the psychological influence (like suppressed anger, "fighting spirit", "emotional control") on the onset and survival rates of breast cancer. Breast cancer is not just a common cancer but also...
  3. Arvo

    BPS/Psychosomatic Theories and Sexism, discussion thread

    Thank you for your compliments @Yann04 and @MrMagoo, it's much appreciated to hear. Very nice in general, and extra so because I can at times be plagued by typical writing bugbears, especially because I do it so slowly and isolated. (I can at times feel so stupid for devoting the limited and...
  4. Arvo

    BPS/Psychosomatic Theories and Sexism, discussion thread

    There exists a strong link between the bps/psychosomatic movement and sexism/misogyny. It’s a bird flight view (I still have a lot to look at, for me this stuff is contextual to my main focus atm), but I think that in essence this is the gyst: So in short: the goal of the psychosomatic...
  5. Arvo

    Review Long COVID – neurological or somatoform disease?, 2024, Tényi, Tényi, Janszky

    Well done, Wyva, good read. (Thank you for providing a GT link. :))
  6. Arvo

    Review Long COVID – neurological or somatoform disease?, 2024, Tényi, Tényi, Janszky

    And all in Hungarian so it's not accessible for criticism by the international Long COVID researchers. Thanks for the summary @Wyva, not fun to read or write about.
  7. Arvo

    Review Long COVID – neurological or somatoform disease?, 2024, Tényi, Tényi, Janszky

    Apparently they are moving the goalposts of somatoform disorder quite a bit nowadays. Somatoform disorder is hysteria. It's in the replacing name ffs, it has the "form" of physical condition but it isn't. (Original DSM-III definition, where somatoform disorder made its official debut in...
  8. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Indeed. The impression I got is almost like there are two currents running within the NIH: a group that's trying to pull this shit, and one that is trying to get good ME research on the road. (That weird mix also appeared in the not-so-deep-phenotyping paper by Walitt et al.) Maybe it's an...
  9. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I'm posting this comment here as well, so others who are interested in this topic are aware of it. The redefinition of interoception by Langevin, Chen, Greene-Schloesser & co is picked up and used to "study" fibromyalgia as an interoceptive disorder: I really think there should be people...
  10. Arvo

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    The study is ridiculous, but I don't find it funny; given the context it's disturbing. This is a direct continuation of the activities of Walitt & his colleagues at the NIH. Short recap: the NIH's division for alternative medicine/complimentary health (acupuncture, yoga, meditation...
  11. Arvo

    United Kingdom: ME Association governance issues

    Thank you for looking it up @Trish
  12. Arvo

    United Kingdom: ME Association governance issues

    A reminder that Riley has a track record of being offensive, condescending and trying to silence views that are not his own. And of showing bloated yet completely misplaced confidence in his own views and vapid pontifications. Valerie Eliot Smith had to file a complaint because of his behaviour...
  13. Arvo

    Functional Neurologic Disorder, La Lésion Dynamique, 2024 Wartenberg Lecture, Mark Hallett

    Sidenote: Mark Hallett is an author in Walitt's "deep phenotyping"/effort preference paper and he commented on the draft of the connected "exploratory study" on PEM in ME/CFS which consisted of a questionnaire study led by a NCCIH lady who spent her career surveying the use of complementary...
  14. Arvo

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Vague, superficial, bland. I can't help but feel like Koroshetz is chiefly "making the right noises" while he awaits the progress of the NCCIH project unfolding under his supervision. As long as he is funding and supporting the unit on "interoceptive disorders" he opened on his department...
  15. Arvo

    Preprint Fatigue >12 weeks after coronavirus disease COVID is associated with reduced reward sensitivity during effort-based decision making, 2024, Scholing+

    The "effort preference" term appears to be a newly coined label -quite possibly inspired by Van der Schaaf, Knoop & co's writings- put on Walitt's old belief on fibromyalgia (and ME) that they are "interoceptive disorders" by which he means a disorder of subjective perception. Walitt got to do...
  16. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Notes of possible puzzle pieces (in case I want to pick this up later): Koroshetz' NINDS (which also staffs Nath and Walitt) is listed as a collaborative partner of COFFI on their web page. Link NCCIH currently initiates NIH collaborative funding seminars for a "Whole Person Research and...
  17. Arvo

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    I've read a large part of the article, and I really like the point it makes, thank you for writing it Jonathan. It's an urgent and important topic to cover, and it's imperative to set up a good basic protocol for it. There are several parts I found especially good, but one of my favorite bits...
  18. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    The impression I got so far is that Nath is sort of "stuck" and in over his head, and that even if he would wish to distance himself from Walitt and this effort preference angle, he can't really without damaging his career at NIH, because his boss and NIH bigwig Koroshetz wishes to park this in...
  19. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I can't do much with this topic atm, but parking this here for any future continuation or usefulness for others: From Jeannette Burmeister's blog series on the NIH's intramural study on ME, The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 1) | Thoughts About M.E...
  20. Arvo

    UK: Question about the MRC Board members in the 1990s and the redacted "ME file"

    If anyone wants to see the redacted document discussing the MRC Board recommendations, it's page 38 of the PDF collection. (edited to add: the organization of the documents is not 100% chronological if I remember correctly, but nearly completely so. Seeing where the doc lies among the other...
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