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Indeed in typical false balance way he kept hammering on how important "consensus" was like it was a matter of differing opinions instead of analysis of the evidence, science and real-life effect on patients vs. the vested financial and professional interests and unfounded ideology of people...

It was another possible explanation I had (it was a while ago, and those years closely together), but I was afraid you'd think me rude if I said it out loud.:D Thanks for your reply and additional information. Wessely's first writing about ME is in the frame of it being mass hysteria, and his...

They can infect you, but only if they are much beloved... (Sorry, I couldn't resist. :p)

Wow. I'm actually crying now. This would be amazing. Thank you @Solstice for posting both those sources.

That's interesting. While not digging in deep (I had promised myself to keep a weekend), I thought that the first UK group who blatantly associated membership of a patient organisation with actual worse disability on paper were Sharpe et al., and that was published in 1992 (at press July 1991)*...

Thank you. :) I hope in time I'll be able to share more of my research finds, but for now, I shouldn't actually be on here and process my notes! :x3:

One of the things I've looked into. At this point I'd say the originator is Wessely (though this topic is a process in development and I'm currently looking at other things) with Sharpe giving it a place in the CBM. In January 1989, in the first article where he is proposing "treating" ME...

This is exactly one of the key points that should be adressed. It's the same as what they did to "fatigue" when the psychiatrists hyjacked ME. Saying that it's all so hard and mysterious is complete nonsense, and mainly psychiatric narrative. The answer to big strides in that department was...

I just came across one of "those people" on Twitter. Putting it here for reference. More on this patient's experience: It was demeaning and unhelpful And in keeping with bps ideology, he discouraged the patient to join a support group or learn information about her illness. Some posts...

There's also no specification for "cognitive dysfunction", it is, as usual, left rather vague. There's a difference with having trouble with finding words at times, acting a bit confused or being a tad forgetful, which is rather common and can have many causes (including stress), and...

I just saw this on Twitter. Seriously, what's the use of "helping the world see" that ME affects "people of all ages and ethnicities" when you have just installed a patron that advertises that graded activity combined with looking at things from a different perspective, NLP (changing thinking...

I'm sorry you had that experience @Ariel . It sounds very harmful and rubbish, and goes to show how much freedom people like him have had to do whatever they felt like, to the detriment of patients, and not only get away with it, but build a reputation as a professional expert on it. And...

Standard hysteria "treatment": 'women are susceptible and oversensitive, if you take them away from the surroundings that influences them into behaving ill/having symptoms, then they will stop it, especially when abused guided by me (which incidentally is much easier when there aren't loved ones...

He was already "treating" patients with a 'programme of activity' in 1996, as can be seen from this advertisement-disguised-as-news: So, I understand he is is a longtime exercise-cures-ME proponent AND practitioner (got income from it), unpleasant, fan of the LP, and played a part in Sophia...

Beautiful @Simon M, it's a recommendation to read the whole poem.

@Joan Crawford I thought it was very good, and the criticisms clear and well-explained. I also liked the proposals/where to go from here. For me that fatigue/malaise thing was the only issue after a quick read. It stood out for me also because of the quality of the rest.

At my quick-read, that's what sprung out for me too in an otherwise good piece. Expecially the use of the term "post-exertion fatigue" instead of PESE (post-exertional symptom exarcebation) or PEM (Post Exertional Malaise, which I personally like less btw, as it sounds diminuishing to me to what...

And draw a model with arrows when you're really serious about it. You can't have a proper model of your fabricated illness mechanism without arrows. Arrows are fancy.

O yeah, I forgot to put on my special BPSCBT Way-Of-Thinking cap with observation-clouding ear flaps and dark motivation tassle. My bad.;) I understand and agree with what you're saying (and yes, it's indeed unsurprising), I was speaking out of what may be expected from someone who claims to...

Indeed strange that there is no specific monitoring of harmful effects, just assuming that everyone that dropped out is unharmed by the tested treatment. I'm wonderings if it was indeed at least the one though: If the one person had nearly completed their CBT course (just that final session is...