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  1. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Coïncidentally I saw a clip of the tv programme QI a couple of days ago where they talked about sleep and how it's still a mystery why we do it. They said that one current theory is that it is for cleaning the brain. (I remember because I chuckled at the image of tiny spunges and buckets...
  2. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    For me that was actually the start of how I eventually rolled into looking at the roots of CBT for ME this year; I started out wanting to write an article about the clear similarities between abuse (especially coercive control and sadistic psychological abuse) and the BPS "treatment" approach...
  3. Arvo

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I saw it come by on Twitter earlier today. If in this situation that's the only arguments you can come up with after 30 years of advocating your approach....sheesh! Edited to add that I'm now even more curious about the upcoming journal article, wondering if the therapy is not being applied...
  4. Arvo

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I might have been unclear, sorry. I'm not a native english speaker, and I meant to ask if I was mistaken in thinking that they are suddenly advocating thorough physical investigation, as I feared I might have misunderstood the meaning of "thorough clinical assessment". (Of course the detail will...
  5. Arvo

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    This was one of the things that made me really angry, because I read it as them suddenly advocating "thorough" physical investigation before starting CBT, while they have advised the exact opposite to physicians for decades. Did I misunderstand? Btw, Sharpe and Chalder (and White most...
  6. Arvo

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    That is undoubtedly part of it (next to a suspected absolute inability to deal with unwelcome reality). But it just occurred to me: didn't they also recently start with selling rights/patents to their CBT? (Would that be a reason for this recent CBT-F stuff?) I vaguely remember something like...
  7. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Exactly. Even though I knew it was bad, reading early material/guidelines/manuals I still found it shocking and infuriating* it pissed me off to no end to see that while there was nearly zero concern whatsoever of applying this therapy to people who were seriously ill (or even having a...
  8. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    In the earliest years there is no "normal" CBT and "special" ME-CBT, they follow the exact same principles. It's the basic assumptions/starting point that make the difference. (Unless I'm translating wrong, CBT-for-ME also doesn't generally persuade the patient to believe that the symptoms are...
  9. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    That this can no longer be the content of CBT for ME, and with that the therapy falls apart. If the final version keeps appendix G from the draft, then firstly, it shows that there is no scientific basis for CBT for ME as it has been applied in the last 30 years. Secondly, it's in the content...
  10. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Thanks for the link and transcript @Simbindi and @Dx Revision Watch .
  11. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I'm not sure if the recovery model being the norm is a historical thing? That link is present-day and for me illustrates how much this ideology, which needs the bending of the meaning of words to make the illusion fit reality, has taken over. The original, early day expectation (or sales pitch)...
  12. Arvo

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I understand and agree that you'd like to have more emphasis on how it is no longer advised to apply CBT in the way it is done now, with more detail on the actual content, like how the behavioural part is graded increase in activity and the cognitive part is influencing patients to ignore their...
  13. Arvo

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    He did use recent stuff in the past, but I can't say if I'd qualify it as "better".
  14. Arvo

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Just checking out an earlier book, the 1913 Vicious Circles of disease. Don't know who Hurry is (Sharpe seems to have an affinity for early-20th century writings with unproven, ideological theories that fit his views.), but his theories seem just as theoretical and unconnected to actual medical...
  15. Arvo

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I'm currently not in the mood to watch the video of post #430, but for those who are interested: The sign on the left of the still says: "Welcome! We wish you an inspiring meeting!", followed by the quote from Steve Jobs: "The difference between a leader and a follower is innovation."...
  16. Arvo

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    (Not to be pedantic, but because I think it's important these things get dissected and understood well, so criticism isn't easily deflected.) It's not exactly the translation of what they say, there's a step in between. It's a argument trick they've been using for a long time. The translation...
  17. Arvo

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    It seems accepted but not yet in published? I can't find it on the publisher's search engine fo the journal, or Pubmed. If anyone has access to the full paper, please send it to me, as I want to read it.
  18. Arvo

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    My transcript is slightly different: (Added because I think the "or" and "'cause'" make it clearer that pointing to NICE's independence was a direct result of him rectifying himself.)
  19. Arvo

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    I've been crossposting about it on another thread. I was looking and taking notes from the video before I realised there was a "transcript". Might be me, but it seems a bit odd how it's just so loosely reported. Some sentences are just jumbled versions with the same words (why make that effort...
  20. Arvo

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    I did indeed think a lot of the questions were good, some very strong even. An observant watcher might have noticed that the Minister did not really answer what was asked about. (I also found it a bit amusing, apparently the rules are that you have to start every question and answer with an...
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