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Registration and primary outcome reporting in behavioral health trials | BMC Medical Research Methodology | Full Text (biomedcentral.com) Abstract Background Registration of research studies is designed to lock investigators into a data collection and analysis plan before a study starts and...

Good one. Or cut corners, saying you did 4x8 minutes while it was actually more like 7, 6.5, 7, and 8-but-with-a-break-because-whew minutes, just like last week, but you don't want to disappoint your therapist or give the impression you were slack. (People pleasing/embarrasment drive.) You'd...

1) I tried a similar thing on my own about 20 years ago. Cycling on the hometrainer, adding a minute every week I think it was. (Or maybe every x days?) For me (Late Stage Lyme but I could possibly also be considered as having ME as a comorbity from reactivated herpesvirus) it meant a shuffle...

Thanks @Cheshire /mod team for adding the link to the actual paper! I had retrieved it, but I'm unfortunately having very increased scatterbrain atm, really glad you added it for me.:thumbup:

If it turns out to be a major factor in ME/CFS, then "zombie virus" is accurate on multiple levels ;) Also, there was a study with similar finds published in the Lancet: Link to study: Evidence of the pathogenic HERV-W envelope expression in T lymphocytes in association with the...

Two twitter threads about the paper: and

:emoji_warning: At this point it's still a preprint. Abstract: As most of you know, in the 80s researchers were excited about several (and separate) finds of retroviral activity in what we now call ME/CFS patients. The main researcher was Elaine DeFreitas, whose finds got dismissed by UK...

Lyme borroleosis doesn't just evaporate by itself. Wheter it stays or goes is not dependant on "cognitive and behavioural responses to the acute illness", but on how fast you are treated and if the treatment works. Also: It was answered twice just this week, in Cell and Nature. (accompanying...

PIFS was the never-used invented second syndrome or "subtype" of CFS from the Oxford criteria (not describing an actual disease process). I considered it a combination of lip service to e.g. Mowbray and Behan so they would cooporate and give the criteria the cred it definitely lacked otherwise...

No treatment protocol available because "The treatment must first be tested in research." Where to begin with that one? :jawdrop: (For starters he stated that it definitely would work and that it was just a matter of timing on the recruitment page: "We already know that chronic fatigue can...

Poor woman. :( Now there's a neon sign truth. (Different angle of course but only yesterday or something I commented to someone on how psychiatry should be better regulated, especially given their track record they deserve eagle eye monitoring, not the trust that the sector can regulate...

Just a reminder that that is the book Michael Sharpe talked about in the "we are the normal people" lecture in The Netherlands in 2019. (And it was bizarre then too.)

Richard Sykes was the one who sent Simon Wessely a draft version of the new guidelines for "CFS" from the Department of Social Security end 1991/January 1992. According to Sykes himself (when he was coördinating the CISSD project) describing his background in 2009: "The first[background...

I'd prefer the article being made into a brochure though, it's more elaborate in content and up to date. Like:

I just read it and I think it's a great article. Very informative and inviting. I think Doctors with ME did a very good job there.* The bit about ME being a positive diagnosis and not a diagnosis of exclusion is not in the PDF brochure attached to the article, and I actually think it might even...

Thanks for the clarification @rvallee , and yes, indeed.

Indeed. I've been busy and unwell, but I do want to comment on this. The portion from the first email was already not ok. It was (in order): 1) using emotions manipulatively (and punishingly, in an untrue way, to devaluate her opinion) 2) devaluing her honest opinion to a mere "blog grabber"...

Ah yes, I missed that it was right in there. (I focused on the ICD claim and quick-skimmed through the rest.) Thanks @Esther12!

I have this as a document & screenshot of an undated , <2016 Swiss RE newsletter. Can this be dated and linked to a PACE presentation by White, and is there a date and confirmation of such a presentation? (How do you know it is a "write up" of his presentation, apart from the obvious content...

I'm having a poor cognitive day, what do you mean with that it happened "the other way around"? And who are "they" that were warned by people who understood what exactly? (I'm sorry if this is obvious, I'm just not getting it through my brain in a way that makes sense.)