Search results

An important reason may be the toxic culture within academia. Highly hierarchic, where criticism can cost you your future. Lots, lots of egoes. Lots of pressure to publish in order to be given and maintain status. And money: publishing means status means income and a justification of you being...

I came across this paper, and am posting it here b/c of the topic. I think it is an interesting read for those who want to read/write about it. It also discusses bias, and modification to get to certain outcomes. Also: an elaborate and relevant reference list for further exploration. How...

There are a series of symposia organised on research ethics by scientists who care about this. They discuss outright fraud and problematic stuff like paper mills, but also QRP, questionable research practices. (In all kinds of disciplines, not just health.) E.g. the end of may saw the 7th world...

Note that in the given source https://www.cfids-me.org/ramsay86.htm, "emotional lability" is mentioned as one of the cardinal features of the cerebral dysfunction in ME, not a cardinal feature of ME itself. In the first edition of Melvin Ramsay's book, 1986, a source for this document*, this...

Thank you so much for summarising the video. What incredibly interesting and exciting research. Very curious about what the enzyme results will be.

I think regulatory capture is probably a good term to use in the context of what happened with ME. I see why that is of relevance for DwME, because when you understand what exactly happened you have a better idea of where the problem lies and how you can effectively bring change. What I don't...

I think recording ME history is highly important, but what is this? How hard was it to write something like: "We think the term "Regulatory Capture" is an important one to know when discussing ME history. RC has been key to many policy problems. {wikilink}" Without that absolutely...

Yeah, but you have to know how to do it. Now, if we are staying within Friends references, it's just "Joey speaking french", an attempt at mimicking instead of the real thing.

Indeed. It is not what other people are saying about her, but dr Hngs own attitude and words that make me lose confidence in the healthy and professional demeanor of DwME, or at least in hers. I actually really like some of the the concrete steps DwME are taking and what they are aiming for...

Well done writing those emails @cassava7 , and thank you for sharing them. I can imagine dr Hng making a mistake while speed reading of the first email, thinking you are asking for overall simplified texts and communications that are easy to read for people with brain fog issues, but in the...

[I'm diagnosed as having Late Stage Lyme with co-infections, one of them being a reactivated herpesvirus. I wasn't sure to post it here or in the "alternative diagnosis" section, I'm sorry if it should have been posted there instead.] In the category 'afraid to ask but important to ask', does...

First of all let me stress that I did not say that the Stokes team did bad science. There probably were good reasons for the hand-and-arm warming. What I was saying was that I was wondering if with that technique they inadvertently prohibited low oxygenation due to rigid (or malformed) red blood...

There are a couple of studies out there discussing capilary vasodilation and temperature (Thermal control of blood flow through capillaries and arteriovenous anastomoses in skin of sheep - PubMed (nih.gov), Low temperature increases capillary blood refill time following mechanical fingertip...

I'm a layperson, but there's another thing about this paper that I noticed: "Briefly, before all experiments, the temperature of the muscle was standardised by warming the hand and forearm in a water bath at 450C for 10 minutes; this temperature was maintained throughout the experiment with a...

Thank you all for your contributions, I really enjoyed reading your diverse responses. I'm currently not doing well unfortunately, and am using my very limited....er....well there you go :laugh:...my very limited trying-to-not-cause-deep-PEM-budget for self care or writing attempt. But I will...

I do too at times! :rofl: (It is a good description, though does it capture the time factor properly?:emoji_thinking:) But indeed unfortunately not fit for academic use in referring to the phenomenon. "Patients are limited in their oomph, and will experience PEM when not being able to...

@Wonko That can be solved with a phone timer. Put it on 2.5 minutes and when it says beep you turn back. I do agree with it being pointless activity when you are already limited. Like I mentioned earlier they also seem to completely leave out the effort rerouting. (wee, you can walk for 8...

Just one of these things I have tumbling around in the back of my head for a while now, and I was curious about your opinion. One of the key characteristics of ME/CFS is that you are limited in what you can do, there is an "energy envelope" that is markedly smaller than pre-illness. You can...

I just created a thread about a paper that is applicable to Knoop and this trial (and others). Registration and primary outcome reporting in behavioral health trials, 2022, Taylor & Gorman | Science for ME (s4me.info)