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  1. Arvo

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Judith Rosmalen will receive a good chunk of that money. Specialised in psychosomatics/MUS/"functional" syndromes, close collaborator with Sharpe, Knoop,Wessely and Chalder, vice president of the European Association of Psychosomatic Medicine (President Michael Sharpe, vice secretary Per Fink)...
  2. Arvo

    More people could have hidden bowel condition: Microscopic colitis

    Great for Victoria. :) And good of the BBC to report on it, including what is needed to diagnose it. I can't remember the source or in what context, but I recently read a whole CBT/BPS thing on these symptoms, explaining how wanting to be near a toilet because of sudden upcoming diarrhea was...
  3. Arvo

    Has the arrival of Long Covid strengthened or weakened the influence of psychosomatic medicine? Discussion thread

    For me the cause of these recent developments in the dutch ZonMw project for biomedical research into ME/CFS most probably falls in this category.
  4. Arvo

    Research funding: Examples needed of ME research projects failing due to not getting funding

    In case I wasn't clear, I was referring to: (That link does not work for me today btw., did it still work for you on Friday?) And you're absolutely sure she's taking ME/CFS serious as a biomedical illness? She might be great, but for me this triggers all kinds of alarm bells. Notions about...
  5. Arvo

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Some worrying developments: Lou Corsius terminated his membership of the sounding board group on the ME/CFS biomedical research program He also made a complaint to ZonMw that got rejected for no good reason (as agreed by the National Ombudsman) The ME/CVS Vereniging started a FOI request to...
  6. Arvo

    Research funding: Examples needed of ME research projects failing due to not getting funding

    Hello @Richard Smallfield, For the US up to 1994 (and a "10 years later" epilogue) Hillary Johnson's book "Osler's Web" is a major source. One of the issues there was that researchers of the CDC, who found the idea that patients were really sick laughable, used the assigned funding from...
  7. Arvo

    Australian teenager tells story of threats and mistreatment

    There's also a reply by Ramsay to the Lloyd et al article that is not accessible via the link given (better not click the link given at that time by Anniekim, my computer gave a safety warning for the page). If anyone has that, I'd be interested as well. (Tagging you too @anniekim , although...
  8. Arvo

    Australian teenager tells story of threats and mistreatment

    The full text is no longer (?) available for free unfortunately. Did anyone happen to save a copy?
  9. Arvo

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    What, you've never mobilized your insights? :p An initial stab at editing would be: Using insights gained from studies in social epistemology and epistemic injustice, we've analysed how people contributing to news articles use social diversion (?) as a tool. We've found contributors...
  10. Arvo

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    Analysing who gets listened to and assigned authority and credibility (and why/how), and how people are positioned/stigmatized in reporting on a "controversial" topic involving marginalised groups while vested interest are involved is very important. Understanding how exactly epistemic injustice...
  11. Arvo

    Spouse wants to invite a friend to visit when I’m very sick

    I'm glad to hear you've found a solution that will probably work for both of you. You say your partner's friend has gotten to know you well - (If it's the honest truth -->) maybe you are comfortable and well enough to also greet her warmly yourself for a short moment and express your regret at...
  12. Arvo

    Has the arrival of Long Covid strengthened or weakened the influence of psychosomatic medicine? Discussion thread

    I think it's a dubbeltje op z'n kant, a dime on its side as the dutch expression goes. The arrival of Long Covid both strengthened and weakened psychosomatic medicine, and I find it difficult to say on which side the coin will fall. In theory psychosomatic medicine should get a hard and...
  13. Arvo

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    I'm not going to read this today, and I'm not well-versed in FND or its background, but if it's the rewrapping of conversion disorder then this is absolutely grotesque.
  14. Arvo

    Severe and Very Severe Myalgic Encephalopathy/Chronic Fatigue Syndrome ME/CFS in Norway: Symptom Burden and Access to Care 2023 Sommerfelt et al

    An good article by one of the paper's authors Trude Schei on Health Rising: Having Severe ME/CFS: A Report From Norway - Health Rising (Apart from this being an incredibly important topic to investigate and record & spread good info on, I also quite like the figures in general: I think the...
  15. Arvo

    Report: Tensions build between autism researchers and the autistic community

    Interesting vid. There's basically a shift happening towards "not about us without us" in a field where working in the exact opposite way (about them without them, by people with no personal experience of what they're building their career on taking an authority position "above" their study...
  16. Arvo

    A general thread on the PACE trial!

    Good morning! Without clues I think it's useless to speculate . What I find of main concern is that SW's claim of "not being part of it" and regularly posing as an independent party justified to give "outsider" comment on the PACE trial is utter baloney. He's been closely involved, so the...
  17. Arvo

    A general thread on the PACE trial!

    Not sure if this was better as a separate thread or in here (where it's a bit buried), but due to a Twitter thread by @Adam pwme I came across, I decided on a whim to combine the video, blog and MRC screenshots in the thread with things from my own collection regarding Wessely's denial about...
  18. Arvo

    Who was it that said being in support groups leads to poor outcome?

    Yes, indeed good to have this documented. Thank you for puzzling it together! Lol, I know what that's like! I still really want to write my analysis about the similarities between the actions of the tobacco and oil companies to create ignorance and keep a set-up controverse going and the...
  19. Arvo

    The serotonin theory of depression: a systematic umbrella review of the evidence, Moncrieff et al, 2022

    A newspaper article on this review and the Royal College of Psychiatrist's response to it are discussed here.
  20. Arvo

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I'm not sure if this is the thread to place this in (I though there was another thread on the response to NG206, but I can't find it), but I wanted to mention the Royal College of Psychiatrists' response to the recent Moncrieff et al review (discussed here in this thread) where they find "no...
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