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  1. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Part 1/2 I can not tell you what Walitt's motivations are, but Walitt's appointment as a lead researcher in the NIH ME/CFS project looks, if you take ME/CFS seriously as a severe immuno-metabolic illness, very out of place. So we're back at: Unless I missed it, I did not find any publications...
  2. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I keep promising myself that this is the last one - and I really hope this is it for a while. (I'm not researching this, but I keep finding relevant stuff when I'm looking around to satisfy my own curiosity.) But I found it important to document that Walitt's time at the NCCIH is divided in two...
  3. Arvo

    CrunchME

    The name reminds me of breakfast cereal :laugh:, but I like the idea of creating a hub.:thumbup:
  4. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    In the minutes of the June 2019 meeting of the NCCIH's advisory council, Walitt's promotion is mentioned when discussing staff changes at the NCCIH. The Annual Report on the NCCIH's Division of Intramural research was discussed. Bushnell is still its scientific director. The DIR: At that...
  5. Arvo

    The NIH should create an Office of Infection-Associated Chronic Illness Research - proposed by the American Association of Scientists, 2024.

    I must confess that when reading the Statnews article it occured to me that I might be looking at a political move: allow the call for a NIH office to get attention, then "listening to the patients" and magnanimously granting the request, funneling it towards the public/official launch of...
  6. Arvo

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    The Behans have done muscle biopsies in ME/CFS patients in the past (I believe this was more Wilhelmina's project than Peter's), although, while done on patients in which PEM was acknowledged, they were afaik not specifically done after inducing PEM.
  7. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    This made me check the introductions again, b/c I thought Walitt was not yet part of NCCIH in February 2013. And this led to another puzzle piece. I suspect if I'd look at the whole thing this looks like a presentation that might hav been Walitt's ticket into NCCIH (or a sign he was on the...
  8. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    2 more additional puzzle pieces: Walitt's old NCCIH, Division of Intramural Research page. In January 2016 it said he still was Director of Clinical Pain Research for the NCCIH Intramural Laboratory of Clinical Investigations. He "will provide his medical and scientific expertise to the...
  9. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    The National Center of for Complementary and Integrative Health (NCCIH) uses their own redefinition of interoception as starting point for their recent focus on interoception research as a "top scientific priority": (Link here, additional info and links in my earlier posts.) That might also...
  10. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Btw, based on sources in my previous posts it is clear how recent the current vogue of researching "interoception" is, and how new and unsubstantiated this whole new NIH interoception focus is as well. I think it's interesting to add that Wikipedia did not have a page in interoception before...
  11. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Another puzzle piece: A 2021 article by Chen et al, redefining the term "interoception". The article is rooted in the NCCIH. Lead author Chen, chief of NCCIH's Basic and Mechanistic Research in Complementary and Integrative Health Branch, is leading the NIH Blueprint Interoception Working...
  12. Arvo

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    That's a very interesting reply @Robert 1973, because it allows to put the claims of the publication next to yet another "alternative" explanation, and because of its context. Is that really an answer re. the neglect of PEM in the study? 'It was a criterion, now go look at the Q&A where we...
  13. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I don't know if you have seen this (see PDF attachment on this post), but just before opening his first unit for "interoceptive disorders" in 2010 (in which he included ME/CFS), Walitt got approval for a study using fMRI to look at the brain activity of fibromyalgia patients. (In the context of...
  14. Arvo

    Trial Report Mixed methods system for the assessment of post-exertional malaise in myalgic encephalomyelitis/CFS: an exploratory study, 2024, Stussman +

    I have a scrambled brain, so I might make a mistake, but a quick skim makes me uneasy that this team is focussing on PEM perception. In general it is an issue that different descriptions mean different things to patients. When they give how they feel a "4" that is not necessarily the same as...
  15. Arvo

    Trial Report Mixed methods system for the assessment of post-exertional malaise in myalgic encephalomyelitis/CFS: an exploratory study, 2024, Stussman +

    In the Walitt et all deep phenotyping paper, she is also affiliated with the National Center for Complementary and Integrative Health (NCCIH). (More on NCCIH's aims in this thread.)
  16. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Indeed. Nath has appointed and protected him. The question is why and if that initiative lay with him or if he was led there by someone else in the team. At the time, SolveME reported: “Dr. Whittemore was very receptive to our strong opposition to Dr. Walitt’s participation in the study, but...
  17. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I need to catch up with this thread, but I can't atm. In the last days I have collected some more stuff (I didn't plan to, but I kept falling down rabbit holes.) I'm not able to put it all here (this is already taking a lot), but there are a couple of things that I think are very important to...
  18. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Here is some more more info that can be slotted into the timeline of events regarding Walitt, the interoception project and the NCCIH: (Some of it is known already on S4ME, putting it here as part of the collection.) If it's actually helpful in a practical way I might be able to create a doc...
  19. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    This is an addition to post #661. I wish I could discuss it all in detail, but it's too much for me now. I'm just leaving some sources and info here, so others can use it. Because of its length I put it behind a spoiler, but I think it's vital information to have for those interested in this...
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