Search results

  1. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I also realise (and see) that this info makes people upset and despaired. I'm so, so sorry if that happens. (I know it's not my "fault" but I do feel guilty because I'm the one posting this stuff here.) A big, warm :hug: to everyone who can use it. This stuff sucks so, so much, and I know I...
  2. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you. I keep trying to let it go (it's not good for me, and it takes up way, way too much energytime), but I keep tripping over things that I think matter too much to leave unmentioned. I wish I was able to organize the information in all my posts in this thread for better accessibility...
  3. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Wonderful. :) I tried to shove in all the necessary sources, but I wasn't always able. If anything is difficult to find, you're welcome to DM me.
  4. Arvo

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    As a layperson I could actually follow this somewhat (with the help of other online sources). What you say makes sense: I understand why you say what you say, and the content of your criticism. When I try to make sense of what Koroshetz and other NIH officials try to make of the study results...
  5. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Post #109 add-on: crucial passage from Chemobrain: a critical review and causal hypothesis of link between cytokines and epigenetic reprogramming associated with chemotherapy - PubMed (nih.gov) Text:
  6. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Ok, let’s look at a couple of things. First of all, Walitt was absolutely very involved in creating the study protocol. It was his job, he conceived and designed the study, and when asked to clarify Walitt’s involvement in the study in November 2016, Nath said: (Nath was asked as principal...
  7. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you. And yes, I understand. (And I can imagine it's been a lot.) I'm sorry if it seemed like I was adressing you alone, I meant to address the people I tagged and the people who read the post. (And I included you by tag because I wanted to give you the opportunity to take it along if you...
  8. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you. My brain is splurting its last outputs in mush mode, but important: This is potentially very severe, but remember that it is still in its infancy (if I'm right, fruitful to nip it in the bud before it gets more established) and that apart from this a lot of good stuff is happening...
  9. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    And finally, for the record (as stated earlier) I do not mind honest, good faith, classic interoception research. I also do not mind alternative practices and wellness activities as support in illness, as long as the practitioners accept it is complementary, supportive and not a main treatment...
  10. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    A couple of tags linked to my above post: @Robert 1973, I am tagging you here as I think you might be interested in Koroshetz’ talk at the 2nd interoception research meeting from just a couple of months ago because of his reply to your letter. @dave30th I am tagging you here because you are...
  11. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Ok, this is going to be a big one. Apologies for the size of the text. In 2018, a group around NCCIH branch director Wen Chen established an project to research their desired mind-body view, which they called interoception, for the benefit of NCCIH’s goal to integrate alternative practises and...
  12. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Puzzle piece (activities Walitt pre-NIH): RePORT ⟩ RePORTER (nih.gov) In 2011 and 2012 Leorey Saligan got funds from the National Institute of Nursing Research to research "Correlates of fatigue in fibromyalgia and chronic fatigue syndrome"; he collaborated with Walitt at the Georgetown...
  13. Arvo

    In major dysmood disorder, physiosomatic, chronic fatigue and fibromyalgia symptoms are driven by immune activation and... 2024 Maes et al

    Umm, can we take a moment for the coinage of the word physiosomatic.o_O It regularly appears to me like peddlers of psychosomatics are so used to psychosomaticing illness that they seem to often use the word "somatic" as shorthand for "psychosomatic" instead of "physical", like it means...
  14. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I certainly reads smokescreeny, with carefully chosen language. (Thank you for posting it here as well.) 1) He was the lead associate investigator and coordinating the study alongside Nath, of course he did not "administer" it himself. 2) That immediately makes me wonder if he did develop an...
  15. Arvo

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Absolutely Claim (Me et al where I make the same claim unsubstantiated, year) (My buddy et al who make the same claim substantiating it with a reference to me et al, year.)
  16. Arvo

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Ugh, the whole thing is a manipulating, dishonest smear-piece meant to portray this movement as rational, helpful people who are the poor victims of Very Bad People (in order to silence just criticism as unwarranted hostility), instead of the failed mind-over-body ideological crapfest it is, but...
  17. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    This info belongs next to the notes PDF/post I made on Walitt's first unit for interoceptive disorders and his history of treating ME/CFS as a disorder of subjective perception. Short summary 2008: Walitt's study protocol for Functional Magnetic Resonance Imaging as a Surrogate Measure of...
  18. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    "Very close to" won't cut it, I suspect there's a high and probably quite specific treshold before the NIH would condemn or even investigate such things. Regarding conduct, I still think there might be better results when discussing this in the realm of QRP's and putting the study analysis and...
  19. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    On what grounds do you argue research misconduct? It is defined as "fabrication, falsification or plagiarism in proposing, performing or reviewing research, or in reporting research results and does not include honest error or differences of opinion", and although there is a lot wrong with this...
  20. Arvo

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Part 2/2, continued from post #69.... This notion that at the time of his appointment Walitt is interested in confirming his belief via brain imaging, also in ME/CFS, is further confirmed by his NCCIH publication of (abt.) March 2016, Neuroimaging of Central Sensitivity Syndromes: Key Insights...
Back
Top Bottom