Wow this is a good article. Very long but I think i absorbed the main points. I find the direction of travel devastating. State welfare and GP surgeries merging roles- it’s already happening. The job centre has a room upstairs at our surgery, for public convenience, you understand...
We can...
I read it this morning. I found it an uplifting experience and feel that it makes some very strong statements and backs them up well. I think it’s very hard not to read this and see the gaping flaws in the BPS paradigm and it also manages to have a dig at the illogical MUS diagnosis without...
I don’t think being unduly positive is helpful. We have good reason to expect the worst, after the last time. However I think they have been pushed a bit further into a corner this time with much more public critiques of the status quo. I am hoping for improvements but expect there will still be...
Also the food category is strange.
Needs food chopping to no problem with feeding is a leap. Are they assuming all people with stroke are men with wives who cook for them?!
I suspect this kind of thing is what the DWP base their criteria on. Has the same feel of a blunt assessment tool...
I had a look through and scored as you described (0-2) and seem to score 14! I am far from independent. Very crude measure and not capturing any subtlety caused by symptoms or taking undue exertion into account.
Yes I bath on my own (not nearly often enough) and go to the toilet on my own and...
Trish I like your charitable interpretation above! I don’t think that’s what they do mean though.
I think they may well have a “benign desire” to help us, but they are not “looking properly” or engaging with the politics and history. It’s such a waste of time and resources when they mean well...
I agree about trying them in the shop though it’s very hard for many of us to do. It’s amazing how many chairs etc are so very uncomfortable!!!
I have a stressless chair and couldn’t sleep in that, for some of the reasons stated above. It is a good change of scene but it doesn’t go back enough...
Yes I found this very strange. I think 6 gave another explanation for their symptoms (maybe they had being diagnosed as having CFS and that’s why they were captured?) and six had barely any symptoms at all, which is quite strange. I was glad the researchers didn’t speculate about why these...
I just read this study (a bit late!).
I filled in the (massive) questionnaires for phase one, so met one of the researchers. She seemed great.
I am pretty confused generally about papers like this, and why they seem pretty ok all the way through then switch on the BPS speak at the end. She...
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