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There is definitely some relationship with hormones, whether chicken or egg... I am female and my testosterone is basically undetectable in tests I have had. Doctors don’t seem to think this is an issue. My hormonal cycle affects my symptoms vastly. My first symptom of illness (neuropathic...

I agree. They are almost always right but I have been put off by some behaviour.

It’s just a difference in terminology, as far as I am aware it’s the same thing.

It all looks good from their site, but I do see that they link to Dr Myhill’s MAIMES campaign calling for a public enquiry into abuse of people with ME. While in an ideal world that would be great I am not sure that she is as science-based as they would want, since they are criticising the BPS...

I am really interested to see what comes of this, we need appropriate support to make the best of what capacity we’ve got and manage pain. I have been abandoned because I am not able to get to appointments but my osteopath does help me and help me target specific issues.

If doctors want us to be passive they really should put more energy and effort into their “active” role! No wonder they get so upset when we don’t play along or dare ask questions.

Hinder!! Hilarious

We’d probably need multiple partners to keep up that 4 hour scheduling. If only they could keep up with us!!! Ha ha dream on.

Sex as pain relief?! That would be nice. My muscles get useless and painful within seconds of repetitive movements and take days to recover so... I wish! It’s good that it’s being talked about.

I like your thinking!

Can others open this link? Not working for me

It helps with my hormone-related breast pain and lumps, but no idea if it helps anything else.

I brought it up with a rheumatologist (when discussing hyper mobility, POTS etc as well as ME) and he had me turn my head a little from side to side and up and down and when nothing happened, symptom-wise said he thought it highly unlikely and even if it was that, that i wouldn’t want major...

All very good points Mithriel.

I like the yellow band of daylight! I hope they can continue, funds-wise.

I agree. I have known a couple of people over the years in our community who have at times falsely claimed to have ME. They have obviously had some mental health issues. One of them had been given a provisional cfs diagnosis at one point and had latched into it despite it being clear that it was...

I had ME for seven years before the POTS symptoms developed, and it felt very different and striking. Suddenly I couldn’t raise my arms above my head without extreme dizziness to pin things on the notice boards at my part time work. Stairs became impossible and my brain really felt like it...

Well yes, but they can’t literally be “well” to do so!

Great article and way to engage people with ME and chronic illness. I enjoy looking at places I have been in the past, where I will not get to again. Today I went INTO the long barrow Waylands Smithy, and to the Uffington White Horse! I have been down tiny Welsh lanes and Cornish beaches that...

Great video! Will share it.