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Thanks so much, that’s a really useful summary of the issues.

https://msmagazine.com/2019/11/11/sick-and-tired-why-fragrance-is-a-feminist-issue/ This is not bad. Mainly focusses on taxis but gives a bit of wider context

Does anyone have any decent articles about the types of people who react to chemical fragrance? Migraines, asthma, eczema, etc? I could use a simple explanation of the issues to share.

Question about sensitivity to chemical fragrance: Do people think that exposure increases our sensitivity? I have just come back from a few days in a holiday cottage. We asked them not to spray air fresheners before we came but obviously they are used every other clean so there was plenty of...

I would like to know too, and how you get on. I still have not raised this with anyone.

Yes I get things like this. Most recently it sounds like there’s a tap running somewhere in the house at night when all is quiet. I get tinnitus and it’s definitely connected to it. I have also had proper auditory hallucinations like hearing my ringtone when it wasn’t going off. I had set it to...

I wish such a lifelong treatment could be found! In my experience, our bodies change and can become intolerant of drugs over time even if they still work to some extent. As we age some are more risky as well. I have yet to find more than a couple of drugs I can take long term (so far) and not...

If only this could be an end to it! Good work David, and CBT watch.

Even your quick and spontaneous posts are beautifully written and expressed. They always move me and I identify with so much. I seem to come across quite a few others who became ill around 1999 like me. I wonder if there were surges or we just notice people on the same timeline as ourselves?

I have raised over £130 with give as you live too. Every week we get a Sainsbury’s grocery deliver and that adds 50p. Over the years it adds up! Worth an extra click I think.

I didn’t have bad PEM from the tilt test, more than I would expect from the trip to rue hospital, but I was not given the traditional tilt test, it was a stand test from lying down, I was connected to machines to measure all kind of things. The test did not continue once they had enough data so...

This is an amazing job! I hope they use your text.

Thanks so much for doing this. A slog sounds an understatement!

Just wow. So glad I am not having to apply for work and deal with Job centre plus.

I am so impressed with these videos. Great quality, clear and I can’t wait to see the others. I think they will so useful for us to easily share with health professionals in various situations when we are under pressure/misunderstood. Must admit to tearing up a little at video one: “is...

I doubt it, I would be interested to see where this came from. It has been long quoted. I imagine patients from both ends of the scale can be easily missed from a count.

I have. I love celery juice (with a bit of carrot). The salts feel good for my POTS but beyond that, no not remotely cured. And I don’t have the energy or ability to stand to juice or wash up afterwards anymore anyway! As what people believe, I think education should have critical thinking as...

I have supplemented with B6 on and off because it’s recommended for minimising menstrual issues. I also have taken half tablets due to the dose of all the contents being so high it seems ridiculous.

Doctors that are able to connect across specialisms and look at the whole body not just their own part. Also that listen and take time to discuss options and information.

Thanks so much for the info and chatting to me. You reminded me of when I used to go to a Turkish bath when first ill and was bone dry! Couldn’t get a sweat on at all despite the heat in there. It really couldn’t be healthy, although some days now I would like that phase back... Let me know...