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It isn't like they haven't been told a thousand times. People everywhere they appear respond to this stuff and write them emails and respond to them on Twitter. The BBC is taking comments on this plan but what are the odds that the people responding about Covid and Long Covid will be platformed...

There was a study with a placebo that is I think must better than the no control studies at all (https://pubmed.ncbi.nlm.nih.gov/40228859/). Didn't find any benefits to the therapy verses placebo.

One thing that strikes me as we read similar styles of qualitative studies from across the world on Long Covid is how similar it is across countries. You get this level of gaslighting and patient abuse and also this view that somehow "rehabilitation" will cure all based on consistent training...

Finding something comfortable and that seals well can require trying a number of options. Quite a lot of the half masks from 3M and other manufacturers are comfortable and tend to fit a wider range of people but to other people they look a lot more concerning and so they tend to be a lot less...

The contrast in views between the Psychiatrist who recognises they have no idea what is causing the patients symptoms and the future will likely expose more and the neurologist who thinks he knows everything and what he knows is that patients can't even tell when they are ill is quite something...

A third reduction is still pretty poor for something everyone is catching a few times a year. Its also well within the bounds of what other adult vaccinations studies have found. Not that vaccines have been offered to teenagers anyway with the current vaccine policy being over 75s.

This I think is a big part of the problem with CBT, its a different thing in every department that runs it. Some of its 1 to 1, some of its group therapy, some of it online and the exercises they are taking people through are all different, there is no one CBT training because if there was we...

Its a supplement, it can be taken and indeed many have taken it without benefit. Is it that ME/CFS works differently or this isn't the core of the fatigue we feel? I have no particular reason to think Urolithin A wouldn't behave the same on ME/CFS mitochondria. So I tend to think its that it...

I self referred for CBT since it was one of the listed treatments for ME/CFS and there was an awful lot of GET in that CBT. Their entire strategy seemed to be to encourage people to expand what they were doing and meet friends for coffees while analysing your own thought pattern. But there was...

Chris Pointings research estimating 400k patients in the UK based on the best area of GPs for diagnosis. It shows a huge list of regions that basically have just a few patients. We talked about it loads on here. There is also the "Isle of Man" study which again S4ME discussed lots. I thought we...

People have them, but most don't. The digital records show less than 10% of patients have a diagnosis and they are handed out by a small select group of GPs who seemingly know about the disease. The few within GP offices elsewhere that have a diagnosis recorded likely got those privately from...

Way too many vested interests who would want to stop the drugs approval and I think that would be a giant fight, it won't happen overnight. Will be years of fighting to get NICE to finally approve it. Then like we have seen with cancer drugs it will involve protests to the government to get it...

The diagnoses don't exist, the GPs don't know about the disease and there is no specialists to even drive such a push out. I doubt the NHS could push out a cure if it was found today to even a minority of patients even after it was approved which would be a monsterously hard thing to achieve in...

I don't know what you mean, they have found yet another way to name exercise and CBT and package it with minor tweaks! That is the sort of change they can all get behind You would think they could only come up with one or two ways to name this but your wrong, they will find infinite ways to do...

Except these were patients who could come into their clinic multiple times, so only the mild patients. Which explains how they were all still in work and why they don't seem to have interviewed people who couldn't work or who lost their jobs after becoming so disabled by the disease they were...

Its really important too when some people are looking at repeat exertions like hand strength because its measuring fatigability not fatigue and certainly not PEM. We have physical measures for PEM (CPET) and fatigability (hand strength) but not fatigue. Fatigue might show up as worse performance...

If they just took a pile of money and set it on fire it would do less harm and cost the same.

Given all that has and is happening with mental health research today this one sentence is deep concerning and quite scary. They are now trying to weasel CBT into replacing immunology as well. The war on actual useful medicine continues.

The Beta Amyloid story for Alzeimers is likely now dead and so begins the media fight for funding for another theory to pursue. Having been railroaded the wrong direction for several decades and multiple custom drugs they have wasted an enormous amount of money due to fraud. Its the sufferers...

I find it very hard to see who is doing the best because its really all going so incredibly slowly and I just find so much of it disappointing. There have been critical flaws in every study, almost always around patient selection bias and and definition of disease etc etc. For once I want to...