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Honestly the MEA is working for the enemy is my thoughts after this, their erasure for the severe continues as does the minimisation of the disease and its severity and impacts. It also bakes in a model which involves healthcare being paternalistic in providing advice on how to live your life as...

The lancet still has the PACE trial published, it has not been retracted and its still being referenced. The accusation that the patients don't have the skills to assess paper quality, yet they were the ones that criticised the papers clear fraud, shows that the healthcare industry clearly...

I am getting that sinking feeling that now our enemies have a 50 million annual war chest to PACE 2.0 us into a century long dark ages.

Why would they care about PEM? The definition of the condition does not include PEM as a required or an optional symptom. This is part of the problem with the WHO, CDC and everyone else’s definition of the disease, they haven't updated them to say "well actually up to half meet the definition of...

We all know the reason why, as do they. They can't get results of anything but harm if they actually do a real study.

Having to avoid infections in the future and wearing a mask around everyone else is completely OK with me if I can have my brain and body functional again! There is a lot I can put up with including a lot of my symptoms if I don't have the constant problem of PEM ruining any attempt to just push...

Nope. Part of the reason is the DWP doesn't actually capture that correctly and the reason for that is the NHS doesn't capture that data either. With so many chronically ill dismissed by the medical system its no wonder everything that depends on it is misinformed. By the time these conditions...

Well then we are in real trouble because that isn't correct at all. Is this yet another initiative where they just make it all about fatigue, the 1980s on replay again and again. That scares me a bit, what is it they will be offering exactly since they admit rightly they have no drugs and need...

Given Germany's current medical system and the researchers involved 50% is the best we can hope for. I would say its more realistic that we get maybe 5 million a year into real research and the rest gets wasted and used against us. That seems to be about the ratio in Europe generally and we...

They really need to explain how it is they think swapping life necessary activities like hygiene, food preparation etc etc for exercise will somehow be a better activity that brings benefits where similar levels of exertion in other activities wont. Its simply not sufficient to suggest that this...

I bet it takes longer than a decade and I bet that 50 million a year isn't going to be enough to make that ambitious goal.

They don't even represent those people anymore, they have largely been fired and stopped paying their membership. I am struggling to see who the BMA is representing here, its not their current membership because they overwhelmingly don't agree that Covid is a problem, most of them don't believe...

There are no accepted biological mechanisms on S4Me so its pretty easy really at this point. I am not sure how when something does become accepted that this will change, I imagine it wont happen until we have a systemic review on some really solid studies or a study with 10s of thousands of...

The biggest barrier to that situation changing seems to be the societal abandonment. The lack of research funding and the general poor views of the illness by healthcare workers means there is no one to do the research and no interest in funding it. So the situation can't change. Sufferers have...

There has actually been quite a lot of papers suggesting it presents differently. I remember at the time being a bit confused by this and asked some of the teenagers with it when they were talking about it and they and the younger children all get it the same way the adults do, its not...

I am beginning to think, given that we find viruses in "healthy" peoples blood all the time, we are going to find it occurs in health people too. I presume Polybio's approach of an antibody that can be detected in a PET scanner which attaches to infected cells is the way this will ultimately go...

Its not the first time some one has gone looking in the blood for viruses unique to the disease. Its a bit like looking for your keys where the light is regardless of whether you dropped them there or not, we look in blood because its easy. If the condition is caused by a persistent viral...

I recall RECOVER trying to do a similar thing and they largely ended up just shuffling the deck a little on the mild-very severe distinctions that the patients seemed to fall into. Number of symptoms or clustering around primary ones just ultimately ends up with lots of patients that match...

And so far ARPA-H hasn't done anything useful. It was in the meeting with the various researchers on Long Covid and it hadn't acted up to that point and still hasn't since. Its all potential at the moment its got no track record, I wouldn't bet on it doing anything useful at this point it seems...

There is also a possibility that the second male peak is being impacted by diagnosis rates. We know that men are less likely to get a diagnosis, its possible the older men are dismissed more than the male children. Because this is gathered from a public health registry its quite likely its...